Category: Family Caregivers

Reinventing After a Family Crisis – from More Magazine

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Article from More Magazine written by Michelle Stacy

When her grandmother could no longer manage by herself, former marketing executive Denise Thomas found her passion: helping the elderly live at home for as long as possible.

On a sultry day in April 2011, Denise Thomas, the owner of Home Instead, a franchise business in Austin, Texas, drives to the home of an elderly client. Ninety-one-year-old Emily Lake moved into her comfortable single-story house five years ago and plans to stay there, thanks to Home Instead’s caregivers, who help her bathe, pay bills, shop, track medications and generally maintain her independence. For Thomas, visits to satisfied clients are the best part of her job.

Link to full article at More.com

 

Family Caregiver Vignette: “At Least One Prayer Was Answered”

Blog Post by Mike Brunt
Story by Linda, one of my wonderful Home Instead CAREGivers – (Become a CAREGiver)

Last week at the Washington County Family Caregiver Conference, I had the pleasure of sitting next to one of my wonderful CAREGivers, Linda. Over lunch, she told me the tragic story below. I asked her to write it down, so I could share it here.

This story simply and openly sheds light on a grim chapter of Linda’s life. But, I hope that through its sharing, other family caregivers will gain perspective and courage to do what is being required of them (specifically as it relates to getting enough support when dealing with angry care recipients who should not be driving).

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by Linda – “At Least One Prayer Was Answered”

In September 1996 my husband was informed on a Monday that his last day of work would be Friday because he would begin kidney dialysis.  So, for the next 7 years, I was his caregiver and took care of everything.  I had a full time job with a lot of pressure and responsibility.  I had to continue my job so we could have health insurance.  Just the medical bills for my husband were over ten thousand dollars a month.

Things were going along okay. Then, in January 2004, we had an ice storm and I asked my husband to either call and postpone his session at the dialysis clinic or let me drive him there.  But no, he insisted that he could drive there himself.  So, he took off for the clinic.  He pulled into the clinic’s ice-covered parking lot and attempted to get out of the car and go in.  He fell to the ground and couldn’t get up. He had broken his leg and didn’t know it.  He crawled from the parking lot to the front door and got the staff’s attention, and then they helped him in with a wheelchair.

He insisted he’d be fine and, “let’s just do the dialysis.”  So that’s what they did. After the session he was helped back to his car and drove home.  I had shoveled out our drive way while he was gone, so he could get out of his car and into the house without any trouble.  After he got into the driveway, he called me from his cell phone to say he’d fallen, and could I come out and help him in. As I was looking at his leg I told him we needed to go to the hospital.

At the hospital, the doctor explained that because of his medical conditions, they could set his leg and put him in a cast, but the chances of it healing were very slim. He insisted they cast him and that’s what they did.  He was prescribed some very strong pain pills, and before we left, the doctor told him he would not be able to drive until he was finished with his pain medications.

So, for the next 6 months, that’s when the really tough times happened.  Because he could no longer drive, I arranged my schedule to take him to his doctor appointments. I scheduled with mass transit to take him to and from his dialysis sessions 3 times a week.  The doctors didn’t tell me that this already angry, angry man was going to get angrier on this pain medicine.  He turned into the devil, and was always yelling, calling me names, trying to hit me, etc.

When I came home from the grocery store one day in June, he and his car were both gone.  I had hidden his keys to keep him from driving, and he must have found them.  I said my prayers, “please Lord, don’t let anyone else get hurt.”  The police called me at about noon.  He was heading out Highway 26 and crossed three lanes of traffic heading the opposite direction.  He crashed into a traffic pole and died.  I asked if anyone else was hurt and was told, “no.”  So, at least one prayer was answered.

 

Holiday Gatherings: Awareness of Your Senior’s Needs – Video

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Mary Alexander from Home Instead Senior Care, discusses helpful tips for enjoying holiday gatherings with our senior loved ones. During these busy family gatherings, it’s important for everyone to be aware and considerate of elderly family members’ needs. Talk to family and friends before they arrive.

 

Caregiving’s Hidden Benefits

By Paula Span of the New York Times
New Old Age Blog, October 12, 2011 – Link to NYT Article

Could there be measurable benefits to your health, and to your brain in particular, from being a caregiver?

It’s practically become an article of faith that the reverse is true, that caring for an elderly relative is so stressful, relentless and draining that it takes a toll on your well-being. Some studies have shown that it can increase your risk of depression and heart disease, impair your immune system, even contribute to death.

That caregiving could actually provide some health advantage is so counterintuitive that when Lisa Fredman, a Boston University epidemiologist, first saw such results emerging from her study of elderly women, “I thought, what on earth is going on here?” she recalled. “I blamed myself. I thought something was wrong with my data.”

But over several years of studying the differences between caregivers and non-caregivers in four locations (Baltimore, Pittsburgh, Minneapolis and Portland, Ore.), Dr. Fredman and her colleagues found that while caregivers were indeed more stressed, they still had lower mortality rates than non-caregivers over eight years of follow-up.

In another study of about 900 women drawn from the same four-site sample, even those classified as high-intensity caregivers — because they performed more functions for their dependent relatives — maintained stronger physical performance than non-caregivers. On tests like walking pace, grip strength and the speed with which they could rise from a chair, the high-intensity group declined less than lower-intensity caregivers or non-caregivers over two years.

“That was a shocker,” Dr. Fredman said.

 

Now Dr. Fredman and her co-author Rosanna Bertrand, a health policy associate at Abt Associates in Cambridge, Mass., have gone back to this pool of women to look at their cognitive functioning. Here, again, caregivers did significantly better on memory tests than did non-caregivers followed over two years. Though the groups were about the same average age, in their early to mid-80s, caregivers scored at the level of people who were 10 years younger.

Along with what’s called “caregiver burden,” gerontologists and psychologists use the phrase “caregiver gain” to reflect the fact that this role, which often exacts such high costs, can bring rewards. But they’ve typically described those rewards in psychological, emotional and even spiritual terms: growing confidence in one’s abilities, feelings of personal satisfaction, increased family closeness. That caregivers can walk faster or recall more words on a memory test — that’s news.

Dr. Fredman has begun referring to this notion that caregivers are not invariably beaten down by their responsibilities as the “healthy caregiver hypothesis.” Taken together, her studies provide some evidence that caregivers, however stressed, may be stronger and stay stronger than women of the same ages who don’t undertake those tasks. The interesting question is why.

You can’t randomize studies like this, assigning some old women to serve as caregivers but not others. So it’s likely that a big part of the differences, Dr. Fredman said, stemmed from self-selection: Women become caregivers because they are healthy enough to shoulder that responsibility. “If you’re not healthy,” she said, “it goes to your daughter or daughter-in-law.” It’s not surprising, therefore, that even high-intensity caregivers have and maintain more physical strength.

It’s also true that Dr. Fredman’s definition of a caregiver sets a fairly low bar, including anyone who performs even one “instrumental activity of daily living,” such as helping someone with bill-paying or phone use. Hands-on help with bathing or toilet use is clearly more stressful, physically and emotionally; caring for someone with dementia can be particularly arduous.

But caregiving itself may provide real benefits. “Most caregiving activities require you to move around a lot,” Dr. Fredman pointed out. “It keeps people on their feet, up and going.” And exercise is known to improve physical health and cognition.

Moreover, Dr. Bertrand added: “Caregiving often requires complex thought. Caregivers monitor medications, they juggle schedules, they may take over financial responsibilities.” That, too, can ward off cognitive decline.

Plus there’s the whole matter of people benefiting from having a purpose. It’s hard to quantify, but it’s real.

So it’s fair to say that the question of how caregiving impacts the caregiver is more complicated and individual than we think. Both could be true, the burdens and the benefits, depending on how demanding the job is and a host of other factors.

That caregiving is a very tough job is beyond debate. “We don’t want to overstate this and say it’s good for caregivers and have governors across the country rush to cut support programs that help families,” said Steven Zarit, a Penn State gerontologist who has studied caregiving. (Of course, governors seem all too eager to do that anyway.)

Still, “it may not be as predictive of their demise as previously thought,” Dr. Bertrand said of elder care and caregivers. “There are potentially some positive aspects.”

 

Table Talk: Tips for Mealtime Conversations with Seniors

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Companionship through Meaningful Conversation

The shopping is done, and the meal is ready and on the table. Your work is complete, right? And now comes the fun part. You sit down to dine with an older loved one. But what is there to talk about? A senior’s world may have shrunk to the size of their four walls. Even so, mealtime conversations are an important part of the dining experience. Without that, elderly depression could be a problem.

Sharing memories is one way to get the conversation going, according to Dr. Amy D’Aprix, a life transition consultant, author, corporate speaker, facilitator, coach, and an expert in aging, retirement and caregiving. “Sharing memories is a great way to deepen your relationship with an aging relative,” D’Aprix said. “But sometimes we all need help thinking of new and meaningful things to talk about.”

That’s why D’Aprix created Caring CardsTM. This packet of playing card look-alikes features more than 50 questions on a wide range of topics that can help you engage a senior loved one in meaningful conversation and provide companionship. Featured below are two Caring Card questions and D’Aprix’s comments about ways that you can use them to start up table talk with older adults.

(For a free set of “Caring Cards” call Mike Brunt at 503-530-1527. I’ll send the cards to the first five callers.)

What are some of the most valuable things you learned from your parents?

Many of us enjoy remembering our parents and the impact they had on our lives. Whether our relationship with our parents was easy or difficult, or more likely a combination of both, most of us recognize that who we are as adults was at least partially formed by what we learned from our parents. This question gives seniors the opportunity to talk about some of the most impactful things they learned from their parents. Follow-up questions could include:

  • How did your parents teach you about “X”?
  • Why do you think it was important to your parents that you learned “X”?
  • Do you think they learned “X” from their parents?

For example, if the senior mentions the “importance of hard work” as something valuable they learned from their parents, you could ask whether their parents worked hard and in what ways. You could ask if their parents required them to work hard as a child. You could also ask if their parents had to work hard as kids and if their grandparents taught them it was important to work hard. This question could lead to many questions about how much time was spent working versus leisure time, and whether the parents thought people who didn’t work hard were lazy.

What was a major turning point in your life and how did it affect you?

As Kierkegaard said, “Life can only be understood backward, but must be lived forward.” By the time they have reached their senior years, many older adults have had numerous turning points. Reminiscing about these turning points allows seniors to make sense of their lives and their choices, and to gain peace of mind now. Natural follow-up questions include exploring more fully one or more of the turning points the person mentions and asking more details about the importance of that turning point in their lives and how they felt after taking the particular path they took.

 

Other questions include asking whether they would take that particular path again knowing what they now know and how they thought their lives might have turned out differently if they had taken a different route. When exploring this topic, it is important to be sensitive to whether a turning point was emotionally difficult or had outcomes that were not easy. Allow the senior to reveal only as much as they are comfortable revealing without pushing too hard or probing beyond his or her comfort zone.

 

A Senior Safe Home for the Holidays

Post by Barbara Murphy

Member, Senior Resource Alliance Northwest

As you plan for your family gatherings this year, give some thought to how easy (or difficult) it is for everyone to enter and navigate around your home.  Has your brother-in-law with the trick knee been having a hard time with the front steps?  Remember the difficulty Grandma had using the bathroom last year?

This may be a good time to consider a safety assessment of your home.

Start at the entry.  Would a handrail make  your porch easier to reach?  Is the
door sill a trip hazard?

Go through each room and notice the other hazards.  Throw rugs and extension cords can be difficult for some people to step over.  Check the transitions between different floor coverings.

Are your door knobs and faucets easy to grip?  Lever handles on doors and faucets  make them much easier for everyone to use.

Should you add a grab bar or two in the bathroom?  If some of your guests will be staying overnight, they may need some extra help navigating the tub or shower.

If one of the gatherings is at the home of one of your older family members, take note of how easily they are getting around in their home.  This is a good time to assess their home as well.

Just a few minor professionally installed additions could make your home safer and help to make your holiday season even more enjoyable for all of your friends and family.

Barbara Murphy, CKD, CBD, CGR, CAPS, Designer/Consultant,
Neil Kelly Designers/Remodelers, Home Repair, New Homes,
15573 S.W. Bangy Road, Suite 100, Lake Oswego, OR  97035
Direct Line:  503.335.9296; Fax:  503.443.2170

 

“Caregiver Village” Game Provides Fun Way to Learn Self-Care

Blog Post by Sheila Watson of Caregiver Village

As you may be aware, the number of unpaid family caregivers in North America is 50 million and growing every day. I’d like to introduce you to Caregiver Village, an online community designed exclusively for those who provide care for anyone with special needs.

Caregiver Village members connect with friends, participate in book clubs with celebrity authors, journal, play mystery games, solve puzzles, and learn valuable information about caregiving. The founders of Caregiver Village have also just put aside a portion of the launch funding to support caregiving organizations. For every person that joins Caregiver Village, they will donate $1 to that persons organization of choice. I’ve created a page which explains everything:

http://www.caregivervillage.com/social-media

Please join Caregiver Village today and pass this along to people you know who are family caregivers.

Related Sites:

caregivervillage.com

facebook.com/caregivervillage

twitter.com/cgvillage

 

Washington County Family Caregiver Conference November 18

Blog Post by Deborah Letourneau, MSW
Program Coordinator of the Washington County Family Caregiver Support Program

SAVE THE DATE!

2011 Washington County Family Caregiver Conference

  • Friday, November 18, 9:00 a.m. to 2:30 p.m.
  • Tuality Health Education Center at 334 SE 8th Ave., Hillsboro
  • Call 503-846-3089 to save your space

 

There is no charge to family caregivers for admission and lunch.

Keynote Speaker:

Rev. Dr. Deborah L. Patterson, M.Mus., M.H.A.,
Executive Director, Northwest Parish Nurse Ministries
“Navigating the Tides of Change in Caregiving”

Discussions and Sessions:

  • Care– Sharing the care
  • Housing– Best options at home or in the community
  • Finances– Decisions and authority
  • Health– Living well with chronic conditions
  • Final Transitions– Nearing the end of your caregiving journey

Printable Flyer for 2011 Washington County Family Caregiver Conference

 

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The Future of Technology in Senior Care by Intel and GE

The Future of Technology in Senior Care

Byline: Shannon McIntyre, Communications Manager, Intel-GE Care Innovations

 

Today, we stand at the precipice of opportunity.  We have spent centuries treating people’s health only at times of crisis, relying exclusively on hospitals and clinics to manage care, excluding family caregivers from the heart of healthcare coordination where they belong.  We have ignored the importance that wellness and social connectivity can play in keeping a population healthy and happy.  We have denied the role that homes and communities can – and should – play in our overall healthcare system.

 

There are numerous studies out there that reveal the importance of keeping older adults connected with friends and loved ones.  According to the Public Library of Science Medicine, loneliness, as a health risk factor, is twice as detrimental as being obese, and equal to the risk of smoking cigarettes and alcoholism.[1] Less frequent participation in social activities is associated with a more rapid rate of motor decline in old age.[2] And over an average of five years, seniors who were the most socially active experienced only one-fourth the rate of cognitive decline compared to those with the lowest levels of social activity.[3]

 

Technology should be harnessed to give people confidence to live independently, wherever they want to call home.  It has the potential to connect millions of people and build relationships that never could have been made before.  We see this already through well-established technology systems such as Facebook, Skype, YouTube, Twitter, and dozens more – yet little emphasis has been made on how similar programs can help seniors overcome the loneliness and isolation that so many of them experience.

 

One example of a solution that was developed specifically to address this need is Intel-GE Care Innovations™ Connect, a new solution from the joint venture between GE and Intel Corporation.  Care Innovations™ Connect is a new wellness communications tool and social networking hub designed to address social isolation in older adults.  It includes an easy-to-use digital device for the senior’s residence that offers wellness surveys that communicate back to professional caregivers, brain fitness games (e.g. trivia game, card matching game), medication compliance reminders, residential community information, and simple social networking tools.

 

Connect is based on a decade of senior focused research and has been rigorously user tested with seniors and caregivers.  For seniors, personalization, a friendly touch screen with large icons and text helps them quickly integrate Connect into their daily routines.  The system also includes an online interface for the professional caregiver to securely access their residents’ wellness data, enabling them to respond immediately to issues.

 

Care Innovations also offers a variety of other tools to help seniors live independently: the Care Innovations™ Guide, a next-generation remote health management solution that connects patients and healthcare professionals; GE QuietCare®, an advanced motion sensor technology that learns the daily living patterns of senior community residents; and the Intel® Reader, a mobile device that transforms printed text to the spoken word for those with reading-based disabilities or impaired vision.

 

At the heart of all these initiatives is the importance of supporting a spectrum of healthy living from wellness and independence on-the-go to managing serious chronic illnesses.  Aging must be viewed in a more positive light, and we have the responsibility to support new innovations and solutions that can help support these great generations.

 

Copyright ©2011 Intel-GE Care Innovations LLC. All rights reserved.  Care Innovations and the Care Innovations logo are trademarks of Intel-GE Care Innovations LLC in the United States and other countries. QuietCare is a registered trademark of Intel-GE Care Innovations LLC.  Intel and the Intel corporate logo are trademarks of Intel Corporation in the United States and other countries, used under license.  GE and the GE Monogram are trademarks of General Electric Company in the United States and other countries, used under license.  *All other third-party trademarks are the properties of their respective owners.  Any use of the trademarks of Intel-GE Care Innovations LLC (and its related companies) is prohibited without express written permission.


[3] Journal of the International Neuropsychological Society (http://tinyurl.com/3szfzkr)

 

Hospital to Home Service with Free Month of Lifeline

Blog Post by Mike Brunt

Being discharged from a hospital or skilled nursing facility is a time of mixed emotions for seniors. Sure, they are happy to be getting back to their familiar surroundings, but physical weakness and health concerns can make getting home and settling in a formidable task.

Enter, Home Instead Senior Care. We just launched an area-wide promotional offer that includes transportation home, four hours of caregiving, and Lifeline activation plus month of Lifeline service all for only $99.

Patients who take advantage of this offer will have no obligation to setup ongoing services with Home Instead and may cancel the Lifeline service after the initial month. This is truly a focused, one-time service to make sure people are getting home safely and settled there. The Home Instead CAREGivers are screened, trained, bonded professionals who can help unpack, do laundry, pick up prescriptions, prepare food, help arrange living spaces, and do whatever else may be needed to get  the patient back into their home routine.

Nurses, social workers, and care managers have expressed gratitude for this incredible offer they can pass along to their patients. “This is great marketing,” said one social worker at a skilled nursing facility in Hillsboro. Under normal circumstances, the $99 wouldn’t even cover the activation and first month of Lifeline let alone transportation from the hospital with 4 hours of caregiving attached.

Please help spread the word about this amazing offer to families who are anticipating a discharge from a hospital, skilled nursing facility, or other healthcare setting. Thanks!

 

Link to Printable “Hospital to Home” Brochure

 

How to Help Your Senior Manage Medications – Video

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

In this video, certified senior advisor Mary Alexander, from Home Instead Senior Care, talks about the difficulties many seniors have managing their medications and ways to offer help. This video is designed for anyone who is caring for an elderly person be it a parent, other relative or friend.

How to Help Your Senior Manage Medications - Video

 

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Senior Nutrition and Mealtime – Video

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

In this video, the first of a five-part series, Certified Senior Advisor Mary Alexander, from Home Instead Senior Care®, discusses senior nutrition and the benefits of mealtime companionship. This series emphasizes important nutritional considerations for seniors, highlights some of the challenges seniors face when trying to maintain a healthy diet, and suggests ways to make mealtime more enjoyable.

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Homemade Memories – Video

Blog Post by Mike Brunt

A mother and her daughter talk about a family recipe that not only followed them from holidays to birthdays, but brought them together to share memories with the ones they love.

Make Mom’s Recipe a Winner

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Mom’s spaghetti and meatballs were always a hit at family dinners. Everyone wanted the recipe. Mom gladly shared it, along with the story of how her own mother had created the dish quite by accident when she added a wrong ingredient.

Many family recipes come with a great story. Now here’s the chance to share yours. If you’re a family caregiver, get your mom or dad’s cookbook and pull out that favorite family recipe to enter in the Homemade MemoriesSM Recipe Contest. Then tell us in a short story what makes this dish so special. Go to MealsAndCompanionship.com to learn more about the contest and how your recipe could be a winner. The contest runs from July 15 to September 15, 2011.

 

(Entry Submissions: July 15 – September 15; Voting Occurs: September 16 – October 7th).

Selected recipes and stories will be online as well as in the Homemade MemoriesSM Cookbook that will be available for purchase prior to the 2011 holiday season. Proceeds will go to the non-profit Home Instead Senior Care® Foundation to benefit North American seniors.

The contest is part of the Craving Companionship program, launched to help seniors thrive by staying connected socially and eating more nutritiously. Research conducted for the Home Instead Senior Care network reveals that the biggest mealtime challenge for older people who live alone is lack of the shared family experience including companionship.

What’s more, an overwhelming majority of seniors (85 percent) say that having someone to share their meals makes mealtimes more satisfying for them, according to research. In addition, nearly one-half (48 percent) say their mealtimes are more satisfying if they have someone prepare their meals.

If you are facing caregiving challenges in your family, we want to help. Please contact your local Home Instead Senior Care office for more of these resources or to schedule a no-cost in-home consultation to learn more about how we can help you and your parents. For Home Instead in Washington County, Oregon, please call 503-530-1527 or visit our interactive online brochure.

 

Book: “Moments This Good, The Softer Side of Alzheimer’s”

Book Recommendation by Mike Brunt

Bonnie Nester’s latest book, ”Moments this Good: The Softer Side of Alzheimer’s,” is a memoir of hope and love.  Join Bonnie as she walks beside her mother through the tangled trails of Alzheimer’s Disease. In “Moments this Good,” Bonnie shares her experiences and insights in a tender and a lovingly humorous way. This is an uplifting, encouraging read to guide others who are losing loved ones to this debilitating disease. Moments This Good gives back the humanity and dignity that Alzheimer’s tries to steal. 

A Portion of the proceeds for this book are donated to the Alzheimer’s Association.

If you would like to purchase a signed and/or personalized copy of any of her books, contact her directly.  She also welcomes any comments – she loves hearing from fellow readers: bonnie@bonnienester.com.

Publication Date: May 2008
ISBN: 9780980244601
208 Pages
26 Black & White Photos
Golden Quill Publishing

Order “Moments this Good”

Read an Excerpt
Bonnie lives in Sherwood, Oregon and is a supporter of Senior Provider Information Network. Learn more about Bonnie and her work at http://www.bonnienester.com/.

New Toolkit Helps Track Senior Medications

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Proper Medication Tracking is Vital to Keeping Seniors Healthy
You’ve just walked out of your mother’s latest doctor’s appointment and your head is spinning. The doctor wants to change the dosage on two medications, stop a third, and start a new fourth medication. Some of the medications need to be taken on an empty stomach and some with food. Some medicines your mother should take twice a day and some just in the evening. Keeping it all straight is making your head ache.
Even more importantly, however, is what can happen if you, and your mother, don’t track her medications properly. On average, seniors ages 85 and older take 34 prescriptions, including refills, per year, according to the American Society of Consultant Pharmacists (ASCP). And adverse drug reactions (ADRs) or noncompliance are responsible for 28 percent of all hospitalizations of the elderly, the organization reports.

The sheer volume of medications that most seniors are taking has the potential to create the perfect storm. Medication-related problems can cause, aggravate or contribute to common and costly geriatric problems including:

  • Depression

  • Dizziness

  • Falls

  • Incontinence

  • Insomnia

  • Loss of coordination

  • Malnutrition/dehydration

  • Memory loss

  • Psychiatric problems

 

Tools and Resources for Family Caregivers
Pill organizers can help track multiple prescriptions. So can the assistance of a family or professional caregiver. The Home Instead Senior Care® network offers many resources to help family caregivers stay on top of their loved ones’ medical situations.

In addition to in-home care services, Home Instead Senior Care has worked with Humana Points of Caregiving® to develop an information management toolkit and the Caring for Your Parents: Senior Emergency KitSM website to help you track medications and other important information regarding your senior loved ones’ health. This toolkit includes checklists and worksheets for medications, conditions, allergies, doctors, health advisors and important documents.

If you are facing caregiving challenges in your family, we want to help. Please contact your local Home Instead Senior Care office for more of these resources or to schedule a no-cost in-home consultation to learn more about how we can help you and your parents.

Most Baby Boomers Lack A Plan To Care For Parents

By Janice Lloyd, USA Today, June 17, 2011
Link to Original Article

A majority of Baby Boomers say they are likely to become caregivers for their parents, but only half can name any medications their parents take, a new survey shows.

The survey of 600 adults ages 45 to 65, conducted for the Home Instead Senior Care network, also found:

  • 31% don’t know how many medications their parents take.
  • 34% don’t know whether their parents have a safe deposit box or where the key is.
  • 36% don’t know where their parents’ financial information is located.

 

“The majority of caregivers we work with have done no advance planning,” says Jeff Huber, president of Home Instead Senior Care, a company that provides non-medical care services. “It is not important until it’s urgent. So much stress and uncertainty down the road can be prevented.

“Lack of planning can lead to serious complications when decisions need to be made quickly, says palliative care nurse practitioner Mimi Mahon, an associate professor at George Mason University in Virginia. “It’s vitally important to plan ahead and have these conversations with parents, or families can act out of fear and make mistakes when emergencies arise.

“Prescription drugs are of particular concern. In the survey, 49% couldn’t name a single drug their parents took. Ask parents about their medications and, if necessary, do research, experts say. Find out the dose, what it’s for, who prescribed it and why. People 65 and older account for about a third of all medications prescribed in the U.S., according to the National Institutes of Health, and older patients are more likely to have long-term and multiple prescriptions, which could lead to unintentional misuse.

“It’s kind of a never-ending process for caregivers,” says Sandy Markwood, head of the National Association of Area Agencies on Aging, part of the Department of Health and Human Services. “It gets further complicated when there is more than the family practitioner. A parent might have several specialists. It’s a lot for a caretaker to keep up.”

Markwood says the Administration on Aging, also under HHS, has been encouraging better record-keeping by seniors and stronger communication between seniors and caretakers since Hurricane Katrina. “Then you had a situation when seniors were evacuated without their medications and no one knew what medications they were on,” Markwood says. “Doctors had to start from scratch.”

One must-have answer for caretakers: What drugs can parents go without and which ones must be taken on schedule. For instance, blood pressure and anti-depressant medications cannot be missed, Mahon says.

The bottom line, she says, is being a staunch advocate for your parents’ health care starts with “having conversations and putting plans in place.”

 

Resources are available online

 The Home Instead Senior Care network’s Senior Emergency Kit is free and available to download (caregiverstress.com). It includes sheets for listing contacts and phone numbers, medications, allergies and conditions.

Senior Emergency Kit

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Research conducted for the Home Instead Senior Care network® tells a striking tale of how family caregivers do not feel they are prepared for a senior care emergency.

Less than half (47 percent) say they are knowledgeable about their parents’ medical histories. And approximately half (49 percent) are not able to name any of their parents’ medications. Furthermore, 36 percent of those future caregivers don’t know where their seniors’ financial information is located.

What are your thoughts about how family members of aging loved ones can prepare themselves for a senior care emergency?

Helpful Resources:
Use the web sites below to help get yourself prepared for that emergency phone call that so many adult children and family caregivers dread.

www.SeniorEmergencyKit.com

www.healthrecordresources.com

Online Community for Caregivers of Veterans

Blog Post by Mike Brunt

A friend referred me to an online community called VeteranCaregiver.com. This looks like an excellent source of support and information specific to caregivers of veterans. In a previous blog post entitled Study Spotlights Challenges Faced by Caregivers of Veterans, I pointed out the unique difficulties faced by caregivers to veterans.  This site should provide some answers and encouragement to those wonderful caregivers.

The home page of the site summarizes what it is all about: “Informal caregiving is essential to help injured or ill Veterans, and this remarkable family support comes at a cost that may include stress, fear, and isolation. Join this virtual community today, created to enhance the quality of life for those who care for Veterans of all eras.” 

The video below is an example of a communications campaign on the site designed to help veteran caregivers share their stories.

What is Geriatric Care Management?

Blog Post by Sandra Hedges, Owner of S.A.G.E. Care Management, LLC

WHAT IS GERIATRIC CARE MANAGEMENT?

Geriatric Care Management encompasses a broad range of services provided by qualified professionals who specialize in understanding the needs of elders and their families. A Geriatric Care Manager (GCM) provides support, guidance, and solutions to meet those needs. Professional Geriatric Care Managers assist elders and their families through the maze of issues that come up during the transitions of aging. Geriatric Care Managers come from a variety of professional disciplines including Licensed Clinical Social Work, Nursing, and Physical and Occupational Therapy. They must be licensed in their fields as well as by the National Association of Professional Geriatric Care Managers (NAPGCM).

One of the most important functions of GCMs is to provide comprehensive and objective assessments that assist elders and their family members in making decisions. The GCM focuses on maintaining the well-being, independence, and dignity of elders while optimizing safety. GCMs specialize not only in meeting the needs of elders, but also in understanding and working within the environment in which the elder exists (such as high conflict families, challenging mental health problems, etc.).

GCMs are trained advocates for elders and serve the primary functions of assessing needs, planning care, coordinating services, and monitoring health. Following is a list of specific duties and roles of the Geriatric Care Manager:

  • Provide crisis intervention
  • Serve as a liaison with other professionals and coordinate a multi-disciplinary team.
  • Facilitate communication with family members who live far away and be a mediator in high-conflict family situations
  • Be the “eyes and ears” at medical appointments
  • Organize details of returning home (enhanced discharge planning)
  • Provide objective home evaluations 
  • Create comprehensive care plans to reduce crises and re-hospitalizations
  • Reduce anxiety for patients and their families
  • Prevent unnecessary hospitalizations
  • Evaluate safety needs in the home and implement changes
  • Locate and arrange qualified in-home caregivers to meet individual needs
  • Provide on-going oversight and management of home care assistance
  • Arrange household management tasks
  • Help with bill organization and payment
  • Counsel during loss and transitions
  • Assist with end of life planning and decision making
  • Organize record keeping
  • Assist with coordination of down sizing / relocation

 

Choosing the appropriate GCM for your family is all about finding the right “fit.” All GCM’s have different backgrounds, specialties and personalities. This is a person you will be working closely with, so you’ll want to select wisely. The professional management a GCM provides allows adult children and other family members to spend quality time with their senior loved ones. Also, the GCM takes pressure off of families by moderating interpersonal and communication issues. When a smooth pattern is established, the GCM can monitor the situation from the background and be ready to directly re-engage as the situation requires. 

Assisting honored seniors on the path of aging involves many bumps and turns along the way. With a process this fluid, a GCM can be an indispensable partner on the journey – one who can help preserve positive family relations during the elder’s final years and beyond. 

If you are interested in learning more about Geriatric Care Management, please visit the websites below or contact S.A.G.E. Care Management at 503-688-3866 or shedges@sage-gcm.com.

Resources:
www.sage-gcm.com
www.caremanager.org

About Sandra
Sandra Hedges is a Board Licensed Clinical Social Worker and Certified Professional Geriatric Care Manager. She is the owner of S.A.G.E. Care Management, LLC. Sandra is originally from Hillsboro, OR and spent the last 7 years on the East Coast. She attended New York University to earn her Masters of Social Work and moved up to Boson to work as the Director of Geriatric Care Management for Overlook C.A.R.E. She is happy to be back in Hillsboro near her family and to provide Geriatric Care Management services for her community.