Category: Clinical Insights for Elder Care

Giving Alzheimer’s Patients Their Way, Even Chocolate

Blog Post by Mike Brunt
Content from New York Times Article by Pam Belluck

(Note by Mike: I like this article, because it talks about caregiving as “dementia therapy” in the absence of effective medical treatments for Alzheimer’s. Having creative, caring people nearby is what seems to make the difference. This makes complete sense to me.)

Margaret Nance was, to put it mildly, a difficult case. Agitated, combative, often reluctant to eat, she would hit staff members and fellow residents at nursing homes, several of which kicked her out. But when Beatitudes nursing home agreed to an urgent plea to accept her, all that changed.

Disregarding typical nursing-home rules, Beatitudes allowed Ms. Nance, 96 and afflicted with Alzheimer’s, to sleep, be bathed and dine whenever she wanted, even at 2 a.m. She could eat anything, too, no matter how unhealthy, including unlimited chocolate. an urgent plea to accept her, all that changed.

And she was given a baby doll, a move that seemed so jarring that a supervisor initially objected until she saw how calm Ms. Nance became when she rocked, caressed and fed her “baby,” often agreeing to eat herself after the doll “ate” several spoonfuls.

With virtually no effective medical treatment for Alzheimer’s yet, most dementia therapy is the caregiving performed by families and nursing homes. Some 11 million people care for Alzheimer’s-afflicted relatives at home. In nursing homes, two-thirds of residents have some dementia.

Caregiving is considered so crucial that several federal and state agencies, including the Department of Veterans Affairs, are adopting research-tested programs to support and train caregivers. This month, the Senate Special Committee on Aging held a forum about Alzheimer’s caregiving.

“There’s actually better evidence and more significant results in caregiver interventions than there is in anything to treat this disease so far,” said Lisa P. Gwyther, education director for the Bryan Alzheimer’s Disease Research Center at Duke University.

Link to full New York Times Article

 

Family Caregiver Support – 2012 Webinar Series

Blog Post by Portland-Area Offices of Home Instead Senior Care

The 2012 Family Caregiver Support Web Seminar Series provides access to information and advice from professionals experienced with issues faced by family caregivers.Caring for a senior loved one can bring a sense of fulfillment, but usually not without a few challenges as well. To help you feel a little more confident and equipped in your role as a family caregiver, the Home Instead Senior Care® network is launching the 2012 Family Caregiver Support Web Seminar Series, featuring free monthly seminars for family caregivers on a variety of essential caregiving topics.

The web seminars, hosted in cooperation with the American Society on Aging (ASA), provide tips, information and advice from the perspective of professionals who are well-versed in issues facing families caring for aging loved ones.

Please note, these Family Caregiver Webinars are not eligible for CEU credits. The CEU credit offering is only available for the webinars featured in the Professional Family Caregiver series.

Please pre-register for any Family Caregiver Webinar by the deadline of 9 PM PST the day before! for the following 2012 Senior Care Web Series. Please click each “Register Now” link below for more details of each webinar and to sign up.

Living at Home with Arthritis – Family Caregiver Webinar
Wednesday, March 21, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

How to Help your Senior Manage Medications – Family Caregiver Webinar
Wednesday, April 25, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Navigating the Senior Care Maze – Family Caregiver Webinar
Wednesday, May 23, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Caring for Someone with Alzheimer’s – Family Caregiver Webinar
Wednesday, June 27, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Managing the Stress of a Family Caregiver – Family Caregiver Webinar
Wednesday, July 25, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

How to Balance Work and At-Home Care – Family Caregiver Webinar
Wednesday, August 22, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Senior Cognitive Issues – Family Caregiver Webinar
Wednesday, September 26, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Helping Seniors with Finances – Family Caregiver Webinar
Wednesday, October 24, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Helping Seniors with Loss of Independence – Family Caregiver Webinar
Wednesday, November 28, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Multi-Generational Living – Family Caregiver Webinar
Wednesday, December 19, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Get more information and pre-register on any webinar above. You may also Email info@asaging.org or call 415-974-9600 if you have questions about registering for or accessing a recorded webinar.

 

 

Website Offers Help for Alzheimer’s Families

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

In my six and a half years of providing caregiving services to seniors at home, I have supported many families affected by Alzheimer’s disease as they struggle to understand and cope with the changes the disease brings to their senior loved ones. My desire is always to help the families know that while their journey will test their emotional and physical stamina, they are not alone and that help is available.

The families I have observed who were most centered in facing Alzheimer’s disease were the ones who had an understanding of the nature of the disease and who sought for and found emotional support through peer groups or professionals.

Because knowledge and understanding are so imperative for families coping with Alzheimer’s, I am pleased to refer you to an excellent online resource: http://www.helpforalzheimersfamilies.com.

The site answers questions such as -

  • What is the difference between Alzheimer’s disease & dementia?
  • What are the stages of Alzheimer’s and dementia?
  • Is Alzheimer’s inherited?

 

But it also goes beyond the basics to provide practical advice on topics such as  -

  • Capturing Memories for Someone with Alzheimer’s or Dementia
  • Alzheimer’s Conversation Tips
  • Creating a Memory Box

 

If you are a member of a family affected by Alzheimer’s disease, this site is for you. If you know a member of such a family, please do them a favor and point them to this thoughtful resource.

http://www.helpforalzheimersfamilies.com

 

 

 

The Future of Technology in Senior Care by Intel and GE

The Future of Technology in Senior Care

Byline: Shannon McIntyre, Communications Manager, Intel-GE Care Innovations

 

Today, we stand at the precipice of opportunity.  We have spent centuries treating people’s health only at times of crisis, relying exclusively on hospitals and clinics to manage care, excluding family caregivers from the heart of healthcare coordination where they belong.  We have ignored the importance that wellness and social connectivity can play in keeping a population healthy and happy.  We have denied the role that homes and communities can – and should – play in our overall healthcare system.

 

There are numerous studies out there that reveal the importance of keeping older adults connected with friends and loved ones.  According to the Public Library of Science Medicine, loneliness, as a health risk factor, is twice as detrimental as being obese, and equal to the risk of smoking cigarettes and alcoholism.[1] Less frequent participation in social activities is associated with a more rapid rate of motor decline in old age.[2] And over an average of five years, seniors who were the most socially active experienced only one-fourth the rate of cognitive decline compared to those with the lowest levels of social activity.[3]

 

Technology should be harnessed to give people confidence to live independently, wherever they want to call home.  It has the potential to connect millions of people and build relationships that never could have been made before.  We see this already through well-established technology systems such as Facebook, Skype, YouTube, Twitter, and dozens more – yet little emphasis has been made on how similar programs can help seniors overcome the loneliness and isolation that so many of them experience.

 

One example of a solution that was developed specifically to address this need is Intel-GE Care Innovations™ Connect, a new solution from the joint venture between GE and Intel Corporation.  Care Innovations™ Connect is a new wellness communications tool and social networking hub designed to address social isolation in older adults.  It includes an easy-to-use digital device for the senior’s residence that offers wellness surveys that communicate back to professional caregivers, brain fitness games (e.g. trivia game, card matching game), medication compliance reminders, residential community information, and simple social networking tools.

 

Connect is based on a decade of senior focused research and has been rigorously user tested with seniors and caregivers.  For seniors, personalization, a friendly touch screen with large icons and text helps them quickly integrate Connect into their daily routines.  The system also includes an online interface for the professional caregiver to securely access their residents’ wellness data, enabling them to respond immediately to issues.

 

Care Innovations also offers a variety of other tools to help seniors live independently: the Care Innovations™ Guide, a next-generation remote health management solution that connects patients and healthcare professionals; GE QuietCare®, an advanced motion sensor technology that learns the daily living patterns of senior community residents; and the Intel® Reader, a mobile device that transforms printed text to the spoken word for those with reading-based disabilities or impaired vision.

 

At the heart of all these initiatives is the importance of supporting a spectrum of healthy living from wellness and independence on-the-go to managing serious chronic illnesses.  Aging must be viewed in a more positive light, and we have the responsibility to support new innovations and solutions that can help support these great generations.

 

Copyright ©2011 Intel-GE Care Innovations LLC. All rights reserved.  Care Innovations and the Care Innovations logo are trademarks of Intel-GE Care Innovations LLC in the United States and other countries. QuietCare is a registered trademark of Intel-GE Care Innovations LLC.  Intel and the Intel corporate logo are trademarks of Intel Corporation in the United States and other countries, used under license.  GE and the GE Monogram are trademarks of General Electric Company in the United States and other countries, used under license.  *All other third-party trademarks are the properties of their respective owners.  Any use of the trademarks of Intel-GE Care Innovations LLC (and its related companies) is prohibited without express written permission.


[3] Journal of the International Neuropsychological Society (http://tinyurl.com/3szfzkr)

 

Though Shunned, Exercise Would Help Arthritis

Content from NPR’s Health Blog

People with knee arthritis are doing a lousy job of getting exercise, according to a new study. That’s not a huge surprise. Who wants to run with aching knees? It’s human nature to want to coddle aches, not exercise them.

But exercise is actually good medicine for osteoarthritis according to the Centers for Disease Control and Prevention. It is proven to reduce pain and inflammation, makes it easier to move, and can prevent or delay disability.

Alas, the people with knee arthritis tracked in this new study are not doing themselves any favors on that front. A majority of the women (56.5 percent) and lots of the men (40 percent) were inactive. That means they got no exercise that would count as moderate (like brisk walking) or vigorous (biking or running) for at least 10 minutes anytime in the course of a week.

“Physical activity for people with arthritis is a key to better health, without question,” says Dorothy Dunlop, an associate professor of medicine at Northwestern University’s Feinberg School of Medicine. But she knows the reality. “They are dealing with pain and stiffness and barriers to being active.”

Her new study, published in the August issue of Arthritis & Rheumatism, tracked 1,111 adults ages 49 to 84 with knee osteoarthritis for a week using accelerometers, which are fancy pedometers. There was no display on the unit, so people didn’t know how much, or how little, activity they had logged. Turns out their exercise levels were a lot lower than found in previous studies in which people self-reported on their activities.

A few of the study participants were getting a move on; 13 percent of the men and 7.7 percent of the women met federal physical activity guidelines: at least 150 minutes (2 hours and 30 minutes) a week of moderate-intensity exercise, or 75 minutes (1 hour and 15 minutes) a week of vigorous-intensity aerobic physical activity. But for that big group of arthritis sufferers who weren’t doing squat, Dunlop says that just getting off the couch would be good. In other words, any activity is better than none.

“Walking is a wonderful exercise,” Dunlop told Shots. “Just finding a neighbor you enjoy [talking with] and going out for a walk instead of talking over the fence would be a great way to weave that into your day.”

Aside from asking one’s doctor for advice on appropriate exercise, Dunlop recommends checking out local chapters of the Arthritis Foundation, which often sponsor water aerobics classes, as well as the local YMCA. Should getting wet sound unappealing, the foundation’s website features exercise videos that can be followed in the comfort of one’s TV room, right next to that now-neglected couch.

 

Senior Nutrition and Mealtime – Video

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

In this video, the first of a five-part series, Certified Senior Advisor Mary Alexander, from Home Instead Senior Care®, discusses senior nutrition and the benefits of mealtime companionship. This series emphasizes important nutritional considerations for seniors, highlights some of the challenges seniors face when trying to maintain a healthy diet, and suggests ways to make mealtime more enjoyable.

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FallProof™ Balance and Mobility Program

Post by Jacqueline Sinke
Jacqueline is the owner of Fitness & Function LLC and is a fitness instructor at the Elsie Stuhr Senior Center in Beaverton, Oregon

FallProof™ Balance and Mobility Program

I am very excited to offer the FallProof™ program in the Portland area. FallProof™ is a nation-wide, award-winning balance and mobility program that utilizes a multidimensional approach to the assessment and treatment of balance related problems.

This unique program focuses on elevating the function of the sensory, motor, and cognitive systems through four core program components:

  1. Volitional and non-volitional control of the center of gravity
  2. Sensory reception and integration skills
  3. Selection and scaling of postural control strategies
  4. Development of a flexible and adaptable gait pattern.

Upper and lower body strength, flexibility and endurance are systematically incorporated into the program, often in combination with the balance and mobility activities presented in the four components.

The overarching goal of the FallProof™ Balance and Mobility program is to promote functional independence by improving or modifying the risk factors that contribute to heightened fall risk among “at risk” and physically frail older adults. This program has proven effective in reducing fall risk and sustaining functional health.

FallProof is a nice fit within my business of providing in-home personalized exercise training, because the program enables an individualized approach for each client. The level of difficulty may be adjusted to appropriately challenge individuals or small groups.

The program is structured to be taught as 60-minute classes, two times per week. The classes progressively challenge participants according to their capabilities while taking environmental constraints into consideration. An important objective of the program is to challenge, but not exceed, the participant’s capabilities by systematically introducing balance and mobility exercises of increasing complexity in a variety of practice environments that simulate daily life.

This intensive, evidence-based program was developed by Debra J. Rose, Ph.D. Dr. Rose is the Director of the Center for Successful Aging at California State University, Fullerton, and she is a Professor in the Division of Kinesiology and Health Science.

FallProof™ was recognized in 2003 by the National Council on Aging as one of seven exemplary model programs promoting healthy aging and improved quality of life.

FallProof Program Overview

FallProof Program Local Brochure

___________________________________________

UPDATE AS OF NOVEMBER 10, 2011

I am now also including FallProof™ Level II. Level I and Level II are targeted training and take the multidimensional approach to balance-related problems.FallProof™ Balance and Mobility Level II: This program is most suitable for older adults identified at high risk for falls; individuals with a history of falls and require the use of assistive devices or wheelchairs for mobility on a regular basis. Level II is beneficial for adults in day health care or requiring assistance in ADL’s.

  • Build me up (Phase I ): focus is on rebuilding strength (8 lessons, 4 weeks)
  • Skill me up (Phase II): focus is on balance and mobility skills (8 lessons, 4 weeks)
  • Keep me up (phase III): focus on skills for maintaining balance and strength (8 lessons, 4 weeks)

Both programs will be offered through the Elsie Stuhr center summer 2012 after the remodel is complete. I have several individual clients that perform level one or two with great success.

___________________________________________

 

To receive additional information about FallProof™ classes offered locally, please contact:

Jacqueline Sinke
Fitness & Function LLC
Call: 503-267-1030
Email: fitnessfunction@comcast.net
Web address: www.FitnessAndFunction.com

 

Discovery Doubles Genetic Clues to Alzheimer’s

Post by Ann J. Curley, CNN Medical Assignment Manager
Link to article on CNN blog

Discovery Doubles Genetic Clues to Alzheimer’s

Two new reports in Nature Genetics detail the discovery of five new pathways for detecting Alzheimer’s disease, the memory-stealing brain illness that is especially prevalent among the elderly.

Previous research had identified five genes linked to Alzheimer’s disease, or AD. The combined efforts of an international consortium of researchers has raised those known genetic markers to 10.

“We’ve really doubled the number of clues we have about late-onset AD. We have a lot left to do to complete the story of AD genetics, but this is a big step,” said Professor Gerard D. Schellenberg of the University of Pennsylvania, lead researcher for one of the studies.

“Almost as important as the genes discovered is the fact that a large number of investigators are working together to solve the genetics of AD,” Schellenberg said. “We just started an international consortium, IGAP (International Genomics of Alzheimer’s Project), so all the groups that produced both papers are now collaborating.”  IGAP includes scientists from four university research groups and creates a shared database that includes genetic information for more than 40,000 patients.

“Of course, I am a bit biased, but I think this is a big deal,” Schelleberg said.

While the new genetic findings are far from being a cure for Alzheimer’s, Dr. Bill Thies, chief medical and scientific officer of the Alzheimer’s Association praised the findings of both studies, noting their strong methods.

“In the genetics world we’ve had a history of small samples,” Thies said. “The fact that we’ve confirmed some genes in a large group means that it’s real, not a statistical anomaly.” The IGAP will continue to share genetic findings, he said, with the hopes  their research findings will offer keys to unlocking information about all of the routes that Alzheimer’s takes in the body. “The more pathways that we can explore will allow us to make progress for preventing and treating AD eventually.”

Schellenberg said research is at a “critical point” in Alzheimer’s treatment.

“Much attention has been focused on therapies that target A-beta production,” better known as brain deposits that cause plaques and tangles, gumming up the brain’s machinery, he said. But the new genetic findings look at new pathways that merit further study, including one that confirms a previous theory that focuses on the metabolism of cholesterol. Another important theme in the new research is that  “innate immunity” is important in relation to disease susceptibility. That’s the theory that  Alzheimer’s could be part of the body attacking itself because it perceives a threat to its protective immune system.

“This is a really important idea that needs to be followed up,” he said.

5.2 million Americans are currently living with Alzheimer’s disease, according to the Alzheimer’s Association, which estimates that by 2050, as many as 16 million Americans will have the disease.

Study Links Paid In-Home Senior Care With Fewer Doctor Visits

Blog Post by Home Instead Senior Care offices in the Portland Metro Area


Link to White Paper: Paid In-Home Care: MORE CARE & BETTER CARE FOR SENIORS

This Home Instead Senior Care-commissioned research project—entitled the “Value of Caregiving at Home” study—examined the perceptions and experiences of U.S. caregivers for seniors by conducting a survey among adults (aged 18 and older) who were providing and/or arranging care for an older adult (aged 65 or older).

Listed below are several findings from the study:

  • As the number of older Americans rapidly expands, paid in-home non-medical care can play a vital role in ensuring that seniors receive necessary and appropriate care even though the U.S. healthcare system is stretched thin in funding and staffing – a problem that likely will become more pronounced in the coming decades.
  • In an especially significant finding, the study indicates that on average, seniors receiving paid in-home non-medical care experience fewer doctor visits each year. This has major financial implications for seniors and their families, the healthcare system, and the federal budget.
  • The use of paid in-home non-medical professionals has a major impact not only on the quality of care that seniors receive, but also on the number of hours per week of care that they receive.
  • The use of professional in-home non-medical care may help delay or even prevent the need for more formal medical care, thus taking significant pressure off the country’s resource-strapped healthcare system – especially hospitals and nursing homes.

 

Link to White Paper: Paid In-Home Care: MORE CARE & BETTER CARE FOR SENIORS

The Age Lab at M.I.T.

Blog Post by Mike Brunt
Content from New York Times Video Article

The AgeLab at M.I.T. is partnering with businesses to develop new technologies geared toward helping seniors stay healthy, active and independent.

I really like the part of this video where they demonstrate the Age Gain Now Empathy System (AGNES). Its purpose is to simulate the mobility challenges and sensory deficits many seniors live with every day.

age gain now empathy system - agnes

Link to Full Article

Study Spotlights Challenges Faced By Caregivers Of Veterans

Blog Post by Mike Brunt – Content by NPR (National Public Radio)

November 11, 2010

The National Alliance for Caregiving’s study “Caregivers of Veterans — Serving on the Homefront” offers an in-depth look at family caregivers of veterans and provides unique insights into the effects of caregiving for a veteran on the caregivers’ own health, work and home life.

These caregivers are twice as likely as others to be in their caregiving role for 10 years or longer, and they’re far more likely to be women (96 percent) compared to the national average (65 percent). They make many sacrifices to their own health and jobs to care for their loved ones. Host Michel Martin speaks with Reed Tuckson, executive vice president and chief of medical affairs for UnitedHealth Group.

Read or Listen to Full NPR Article Online

7 Types of Normal Memory Problems

Blog Post by Mike Brunt

Content from Harvard Health Publications, Harvard Medical School - Link to Article

Forgetfulness — 7 types of normal memory problems

It’s normal to forget things from time to time, and it’s normal to become somewhat more forgetful as you age, but it’s not normal to forget too much. But how much forgetfulness is too much? How can you tell whether your memory lapses are within the scope of normal aging or are a symptom of something more serious?

Healthy people can experience memory loss or memory distortion at any age. Some of these memory flaws become more pronounced with age, but — unless they are extreme and persistent — they are not considered indicators of Alzheimer’s or other memory-impairing illnesses.

Seven normal memory problems

1. Transience
This is the tendency to forget facts or events over time. You are most likely to forget information soon after you learn it. However, memory has a use-it-or-lose-it quality: memories that are called up and used frequently are least likely to be forgotten. Although transience might seem like a sign of memory weakness, brain scientists regard it as beneficial because it clears the brain of unused memories, making way for newer, more useful ones.

2. Absentmindedness
This type of forgetting occurs when you don’t pay close enough attention. You forget where you just put your pen because you didn’t focus on where you put it in the first place. You were thinking of something else (or, perhaps, nothing in particular), so your brain didn’t encode the information securely. Absentmindedness also involves forgetting to do something at a prescribed time, like taking your medicine or keeping an appointment.

3. Blocking
Someone asks you a question and the answer is right on the tip of your tongue — you know that you know it, but you just can’t think of it. This is perhaps the most familiar example of blocking, the temporary inability to retrieve a memory.  In many cases, the barrier is a memory similar to the one you’re looking for, and you retrieve the wrong one. This competing memory is so intrusive that you can’t think of the memory you want. A common example is calling your older son by your younger son’s name, or vice versa.

Scientists think that memory blocks become more common with age and that they account for the trouble older people have remembering other people’s names. Research shows that people are able to retrieve about half of the blocked memories within just a minute.

4. Misattribution
Misattribution occurs when you remember something accurately in part, but misattribute some detail, like the time, place, or person involved. Another kind of misattribution occurs when you believe a thought you had was totally original when, in fact, it came from something you had previously read or heard but had forgotten about. This sort of misattribution explains cases of unintentional plagiarism, in which a writer passes off some information as original when he or she actually read it somewhere before.

As with several other kinds of memory lapses, misattribution becomes more common with age. Age matters in at least two ways. First, as you age, you absorb fewer details when acquiring information because you have somewhat more trouble concentrating and processing information rapidly. Second, as you grow older, your memories grow older as well. And old memories are especially prone to misattribution.

5. Suggestibility
Suggestibility is the vulnerability of your memory to the power of suggestion — information that you learn about an occurrence after the fact becomes incorporated into your memory of the incident, even though you did not experience these details. Although little is known about exactly how suggestibility works in the brain, the suggestion fools your mind into thinking it’s a real memory.

6. Bias
Even the sharpest memory isn’t a flawless snapshot of reality. In your memory, your perceptions are filtered by your personal biases — experiences, beliefs, prior knowledge, and even your mood at the moment. Your biases affect your perceptions and experiences when they’re being encoded in your brain. And when you retrieve a memory, your mood and other biases at that moment can influence what information you actually recall.

Although everyone’s attitudes and preconceived notions bias their memories, there’s been virtually no research on the brain mechanisms behind memory bias or whether it becomes more common with age.

7. Persistence
Most people worry about forgetting things. But in some cases people are tormented by memories they wish they could forget, but can’t. The persistence of memories of traumatic events, negative feelings, and ongoing fears is another form of memory problem. Some of these memories accurately reflect horrifying events, while others may be negative distortions of reality.

People suffering from depression are particularly prone to having persistent, disturbing memories. So are people with post-traumatic stress disorder (PTSD). PTSD can result from many different forms of traumatic exposure — for example, sexual abuse or wartime experiences. Flashbacks, which are persistent, intrusive memories of the traumatic event, are a core feature of PTSD.

Link to Article

Baby Doll Therapy for Memory Care Residents

Blog Post by Robyn Hosier
Robyn is the Resident Care Coordinator at Clare Bridge Beaverton

Baby Doll Therapy for Memory Care Residents

The Spectrum of Behaviors and Emotions
Day by day we see residents that exhibit a complete spectrum of behaviors and/or emotions.  Situations that arise in the early morning, will certainly give way for something new by the afternoon.   This goes hand in hand with delivering quality dementia and Alzheimer’s care.  Providing an environment that allows for these rapid, daily changes is a challenging and daunting task. As well as, learning how to provide “happiness” and “comfort” to a person with a declining mental state.

Happiness Defined
Happiness can be defined as simply as this, “the satisfaction of needs.”  The needs, however, can change from age to age, year to year and goal to goal.  In dementia care, finding the need that triggers “comfort” can make the difference in dealing with a difficult behavior and a “happy” resident.  Pinpointing what a person requires to be happy and comforted is a talent that caregivers can learn through observation and application.  “Comfort” can be explained best by saying, “to lighten the burden.”  That may leave a lot to the imagination, but can be interpreted as easily as saying, “to make feel better.”

Each Resident – A Unique Individual
When introducing different therapies to residents, it will always enhance your skill set to learn as much about the resident as possible.  Learning what they were like before the Dementia or Alzheimer’s, and since the onset, can prove successful when trying to implement a plan that provides comfort and happiness.  Not every concept will work for every resident.  Remember that each person, prior to diagnosis, was a unique individual with likes and dislikes, talents and skills.  This has not changed.  Each resident is still a unique individual.  Some things do not differ from their essential personality.  It will be your job to learn and determine what will compliment their current needs.

Innate Capacity for Love and Nurturing
The ability to love and the desire to be a needed and useful, contributing member of any society is part of our basic nature.  Our capacity for love and nurturing is, by far, the strongest, innate basic need we have.  This “need” can be utilized to provide comfort and happiness for the dementia/Alzheimer resident. Even when the proficiency of speech and the dexterity of movement have left, love and nurturing can still be a deep desire that needs to be fulfilled.  That fulfillment can provide brief, or not so brief, moments that are  needed for a resident’s mental success.  Brief moments that they may not remember, but  moments that gave them comfort and happiness.   This is why I utilize “Baby Doll Therapy.”

Everyone Loves Babies
On any given day, it becomes apparent that someone is overly agitated, someone is aggressive, someone is non-verbally acting out, someone is reluctant to accept care, someone appears depressed, someone is more confused than usual or someone just needs to be busy with something.  Everyone loves babies.  Male and female residents both benefit from seeing a baby or a child.  When families bring their children or grandchildren or even great grandchildren, the residents will come alive with smiles.  Even when they can’t remember who their visitors are, they remember youth.

Universal Emotional Needs
Introducing baby dolls can provide moments when the resident can love and nurture another human being.  The doll has a symbolic meaning and provides purpose and healing for people with dementia.  Residents will often provide immediate feedback regarding what you do or say.  Or, what they do or see.  A baby doll can satisfy a universal emotional need that isn’t often fulfilled.  Studies show that there are 5 significant emotional needs:

1)  To feel needed and useful

2)  To have the opportunity to care

3)  To have self-esteem boosted

4)  To love and be loved

5)  To express emotions freely

Baby doll therapy can easily accomplish the satisfaction of these needs.  Never does a person feel more accomplished than when caring for someone/something else.  For a lot of my residents, it’s baby dolls.  For others, it’s a stuffed animal that may remind them of a favorite pet.  Both offer a comforting measure and happiness that allows the resident, even in a demented state, to feel as if they are providing and fulfilling a need for someone else.  This is enormous in magnitude when you consider that these residents are completely dependent on others for their own care.  Baby dolls, stuffed animals and the like, let them feel needed instead of always being “in need.”

Case Study – Nadine
Let’s take a look at Nadine.  Nadine came to us after having lived in her own home for 60 years.  Her husband had died several years before.  Family had decided that “mom” wasn’t able to live on her own any longer.  Her dementia had progressed to a point that she was unsafe to be living without supervision.  It was a tough decision for the family.  Guilt and worry clouded their minds and they obsessed over leaving their mother in this new unfamiliar place.  Nadine, however, reacted like most new residents entering a memory care community, with retaliation!

Nadine had been a school teacher for many years.  She had raised her children, tended to the needs of her husband and when he had passed away, she ran her house.  She swam and walked daily.  She cooked her own food, cleaned her house and minded her financial interests.  This is clearly a woman that had been in control for many years.  She began to try and run “our house,” so to speak.  She, still being able to communicate fairly well, was telling other residents where to go and what to do.  She found a dry erase marker (bright red) and began writing her “lessons” on the walls of the community.  She prattled on endlessly about how we were all bad children, residents and staff included, because we didn’t listen to her teachings.  She would write us notes of how to improve our business.  Although the notes were mostly nonsense, to Nadine they showed structure and organization.

Hoping to find just the right balance, her medications were adjusted and readjusted by her physician.  Some changes proved successful, others not so much.  In dementia care, we realize that medications cannot fix everything.  We still train to be knowledgeable in the things that medications cannot help with.  We provide interventions that are resident specific, things that they can relate to from their own personal history.

Well after all the pharmacology and the personal attention, we offered Nadine a baby doll that had been donated.  At first, she thought the baby was mine, as I had asked her to baby-sit for me.  She held the “baby” carefully and was bright as the afternoon sunshine when she stared at the baby’s face.  She spoke to the doll and coddled it like a new mother.  Pretty soon, the baby was hers.  She would find small articles of her own clothing to swaddle around the baby.  She would share her food with the baby.  That is somewhat messy but messes can be cleaned.  She would discuss mothering techniques with other residents and proudly announce that this was her son, even when “he” was dressed all in pink.  To Nadine, this was an area in her life that she had control over.

As time went by, Nadine’s unusual behaviors subsided.  Her attentions were focused on taking care of the baby and not lecturing all of the other residents on how to be good students.  Her demeanor became gentle and she would exchange pleasantries with staff.  Her conversational skills were a bit of “word salad” but pleasant none the less.  Staff began to provide necessities for her and the baby.  A new t-shirt, tiny little diapers, a bottle, a diaper bag and even a stroller.  This was an experiment that proved beneficial for both the staff and the resident.  Everyone was involved in helping Nadine tend to this little baby.

After generating successful results, we began trying this with other residents.  Although this does not work for every resident, it has proved to be a positive experience for most of them.  We included male residents in this assay.  We found that while the males do not necessarily “dote” over the babies like the females, they do find comfort in feeling the infant effigy lying in their arms.  One gentleman will hold the doll during meal times.  We find that if he is holding the baby, he eats more.  This is a man who has had weight loss and is on hospice.  Getting him to eat better has increased his strength.

Results – Pleasing and Surprising
In the beginning we were concerned over what family members might think, after all we don’t want to diminish the dignity of a grown adult.  We found that most families were pleased and surprised at their loved one’s attachment to a doll or stuffed animal.  Most wished they had thought of it themselves.  Now, we are finding that families are bringing in dolls and animals for their mom, dad, grandma, grandpa, etc.  What started off as an attempt to redirect difficult behaviors has turned into a constructive use of creative therapy.

Living In The Moment
Alzheimer ’s disease and Dementia is a grueling end to what should have been a perfect life.  The seconds of clarity, the moments of reminiscing, the security of knowledge will all become parts of the past, which, too, will be forgotten.  In a memory care community, you should be living in the exact moment that you are in.  Offer that moment to your residents and make it special.  It may be forgotten all too quickly, but for an instant, you provided something that made a personal connection.  How priceless the moment is!

Hospital Delirium – 6 Questions to Protect Elderly Patients

HOSPITAL DELIRIUM – 6 QUESTIONS TO PROTECT ELDERLY PATIENTS
By PAM BELLUCK, New York Times, June 24, 2010
Article first appeared on New York Times site

This week, Pam Belluck reported in The Times on the risk that elderly patients may become confused and delirious while in the hospital. Here she offers advice on how to prepare when an elderly patient is headed to surgery or a hospital stay.

About a third of patients over age 70 experience hospital delirium, and the consequences can be serious, delaying a patient’s recovery and even leading to placement in a nursing home. Elderly patients who experience delirium are also more likely to develop dementia later on, and more likely to die sooner than patients who do not become delirious.

Many readers have asked me what family members can do to help lower an elderly patient’s risk. To find out, I turned to three experts –  Dr. Margaret Pisani at the Yale University School of Medicine, Dr. Wes Ely at Vanderbilt University School of Medicine and Dr. Sharon Inouye at Harvard Medical School. Based on their advice, here are six questions family members should ask to lower an elderly patient’s risk for hospital delirium.

1. Do the nurses and doctors routinely screen for delirium or identify high-risk patients?

Older and younger patients who develop severe infections or heart, liver or kidney problems are at higher risk for delirium. But about 75 percent of delirium cases are missed when the hospital or its intensive care unit is not actively screening for it. While delirium can cause patients to become aggressive, disruptive or incoherent, it can also manifest itself in much less obvious ways, making a patient seem withdrawn or disconnected. Even with regular screening, family members are often the first to notice subtle changes. If you detect new signs that could indicate delirium — like  confusion, memory problems or personality changes — it is important to discuss these with the nurses or physicians as soon as you can.

2. How does the hospital deal with agitation or delirium in patients if it develops?

The longer the duration of the delirium, the greater the chances of poor consequences for the patient, so it should be addressed quickly. Experts say hospitals can treat delirium by helping patients sleep, making sure patients are hydrated, allowing family members to stay at patients’ bedsides to help them become reoriented, and getting patients up and walking when it is safe to do so. Family members should also inquire about hospital policies involving restraints for confused patients. Removing restraints is often recommended because they can cause patients to feel paranoid or trapped. Some hospitals use anti-psychotic medications like haloperidol, but some experts caution that these should be used in moderation and are not yet proven to work.

3. What does the hospital do to keep patients from becoming disoriented?

Situations like being without one’s eyeglasses, being in a darkened room and being unaware of the day and time can trigger delirium. Hospital rooms should have clocks, calendars and adequate light, and nurses and doctors should ensure that patients have their glasses, hearing aids and dentures. Family members should make sure the hospital staff knows if the patient needs these items. The family can also bring a few familiar objects from home to help a patient stay oriented. Things like family photos, a favorite blanket for the bed, a beloved book or relaxation tapes can be comforting for all patients. Family members can also help by speaking in a calm, reassuring tone of voice and reminding the patient where he or she is and why.  Massage can be soothing for some patients, and if it is all right with the medical staff, family members can walk with the patient in the hallways. Families should limit the length of visits and number of visitors to prevent patients from feeling overwhelmed, but they should also try to make sure the patient is rarely alone. If the patient experiences an acute episode of delirium, relatives should try to arrange shifts so someone can be present around the clock.
4. What policies are in place to make sure patients get adequate sleep?

Family members should find out if patients are able to sleep through the night or if they will be awakened for medical tests. Find out how the hospital controls noise and whether it offers any nondrug measures like back rubs or warm tea to promote sleep.

5. If my family member needs a urinary catheter or other bedside interventions, how does the hospital decide when to remove them?

A common procedure like a catheter insertion can spur anxiety in frail, vulnerable patients. Experts say it’s important to remove catheters, intravenous lines and other equipment whenever possible because they can make patients feel trapped, leading to delirium.

6. Will the physicians and pharmacy staff review my family member’s medications to identify medications that increase delirium risk?

Bring to the hospital a complete list of all medications and dose instructions, as well as over-the-counter medicines. It may help to bring the medication bottles as well. Prepare a “medical information sheet” listing all allergies, names and phone numbers of physicians, the name of the patient’s usual pharmacy and all known medical conditions. Also, be sure all pertinent medical records have been forwarded to the doctors who will be caring for the patient.