Category: Alzheimer’s and Dementia

Live Training Sessions for Alzheimer’s Family Caregivers, Starting May 22

Blog Post by Mike Brunt, Franchise Owner, Home Instead Senior Care

 

OVERVIEW

By now, many of you have heard about our free online courses for family caregivers who are taking care of loved ones with Alzheimer’s or other dementias. Now we are taking this training to the next level by offering free live workshops covering essential topics for Alzheimer’s family caregivers. Please call today to reserve your seat in this valuable educational opportunity.

The training was developed by Home Instead Senior Care in consultation with a nationwide panel of experts and will run over the course of 3 weeks with a 1.5 hour session each week. We will take a group of around 10 family caregivers through the courses sequentially as each course builds on the previous one.

In Washington County, we will be offering this series of classes several times in 2012. Our first round starts on Tuesday, May 22 and is detailed below:

LOCATION

Home Instead Senior Care Office
12194 SW Scholls Ferry Rd., Tigard, 97223

CALL TO REGISTER

503-530-1527

TRAINER

Jean Blackburn, Gerontology Specialist

Jean has earned a special certificate from PCC’s Gerontology Department  in “Advanced Behavioral and Cognitive Awareness.” Jean has been a High School Teacher, VP of operations in a training seminar company, has worked for Home Instead Senior care for about 2 years, and most importantly, has been a family caregiver for 10 years for her aging mother who had Alzheimer’s disease. It was the personal experience Jean had with the care of her Mother that inspired her to be of service to other seniors and work with like-minded people. Jean is a dedicated life-long learner who enjoys spending time with her family and friends, with emphasis on her 1-yr.-old Grandson, as well as hiking, exercising, reading, volunteering with “Elders in Action,” and trying new things.

DATES, TIMES, TOPICS COVERED

Date: Tuesday, May 22, 2012; 6:30 – 8:00 p.m.

ALZHEIMER’S DISEASE OR OTHER DEMENTIAS

  • Learn to recognize the symptoms of Alzheimer’s disease or other dementias.
  • Discover how Alzheimer’s disease and other dementias are diagnosed.
  • Understand more about the behaviors that can be caused by the symptoms of Alzheimer’s disease and other dementias.

 

CAPTURING LIFE’S JOURNEY (SM)

  • Discover how “Capture Life’s Journey” can help you and others provide the best care for your loved one.
  • Learn techniques to encourage your loved one to share their stories and memories.
  • Become familiar with the format of the Life Journal and how to record information about your loved one’s past.
  • Find out how to use the Life Journal in partnership with professional caregivers.

 

Date: Tuesday, May 29, 2012; 6:30 – 8:00 p.m.

TECHNIQUES TO HANDLE CHALLENGING BEHAVIORS

  • Learn more about the challenging behaviors that may be displayed by those with Alzheimer’s or other dementias.
  • Discover techniques to help handle these behaviors.
  • Determine what techniques work best to manage different types of behaviors.

 

Date: Tuesday, June 5, 2012; 6:30 – 8:00 p.m.

ACTIVITIES TO ENCOURAGE ENGAGEMENT

  • Learn about the benefits of staying active for a person with Alzheimer’s disease or other dementia.
  • Learn about three types of activities — for mind, body, and soul.
  • Discover various techniques to encourage your loved one to engage in an activity.
  • Become familiar with activities that are suitable for late stage Alzheimer’s disease or other dementia, to stimulate your loved one’s five senses.

 

Free Alzheimer’s e-Learning Courses for Family Caregivers

Blog Post by Mike Brunt, Local Owner, Home Instead Senior Care
on behalf of all Portland Area Home Instead Locations

This series of online training courses will give you basic information about Alzheimer’s disease and other dementias. More importantly, you will gain valuable insight for providing better care for a loved one with these conditions.

At the end of the course you will be equipped with several techniques to help improve both your and your loved one’s quality of life.

Each class can be completed within 5-15 minutes. No preregistration required.

At the end of each class you can download a Class Checklist PDF.

(Below is a review from Tina Jackson, a trusted employee who has coordinated service for my clients and CAREGivers for 3.5 years.)

I just completed this course, and was very impressed by the way the information was presented.  The information was simple and clear, the graphs were informative and eye-opening, and the testimonials and interactive role-playing allow the reader to see the suggestions in action.  The maps of the houses describing different ways to redirect in different rooms of the house, or various safety hazards to consider, is again, very simple and thought provoking.  I also like how the information stresses the importance of family caregivers taking care of themselves too.

To me, the information was presented in a way that seemed thorough, but not overwhelming, and the option to be able to print a summary of each section allows the reader to be able to keep this information at their fingertips, and/or easily share it with others.

I am more and more impressed with Home Instead Senior Care as time goes on.  I do feel truly blessed to be a part of such a wonderful organization, and to truly value and believe in what we have to offer our community, and whomever else we might impact.  This is an awesome resource I am very excited about.

 

And Finally, here is one more screen shot from the online training.

 

Techniques to Manage Challenging Behaviors of Alzheimer’s Disease

Blog Post by Mike Brunt on behalf of all Portland Area Home Instead Locations

Those of you who have cared for a person with Alzheimer’s disease know you can expect to hear the same stories, concerns, and comments over and over again. Did you know there is a right way to respond to the repetition? Other challenging behaviors of Alzheimer’s disease include refusal, delusions (or false beliefs), aggression, false accusations, wandering, and agitation.

Alzheimer’s expert, David Troxel, confirms that knowing and practicing certain techniques for handling difficult behaviors can keep family caregivers from being pushed to the breaking point.

Home Instead Senior Care offices train their professional CAREGivers in the following techniques that will also be very effective for family caregivers.

  • Redirect. The first time a question comes up, take a few moments to answer the question fully and provide reassurance that all is well.
  • Physically move items or the senior from the environment. If an object or his or her surroundings are causing frustration, remove that item or the senior from that situation.
  • Offer simple choices. If a senior resists bathing, a simple choice would be: “Would you like your bath now or in one hour?” or “Would you like to take a bath or a shower today?”
  • Apologize and take the blame. Apologizing or taking the blame in a situation takes the attention off of the older adult. It may help them calm down if they believe something was not their fault.

 

Alzheimer’s experts suggest that a family caregiver should try managing a difficult behavior three times in three different ways to achieve the best results.

The Home Instead CAREGivers I employ in Washington County, Oregon, receive 8 hours of standardized training specifically on Alzheimer’s disease and other dementias. Our training program is true to it’s name which is “CARE.” It stands for Changing Aging Through Research and Education. If you are a family caregiver and feel you could use some support from one of my excellent, trained Home Instead CAREGivers, please give me a call at 503-530-1527.

For more on Alzheimer’s and other dementias, go to www.helpforalzheimersfamilies.com.

 

Bilingualism Delays Onset of Dementia

Blog Post by Mike Brunt
Content from New York Times article by Yudhijit Bhattacharjee

(excerpt)

Bilingualism’s effects also extend into the twilight years. In a recent study of 44 elderly Spanish-English bilinguals, scientists led by the neuropsychologist Tamar Gollan of the University of California, San Diego, found that individuals with a higher degree of bilingualism — measured through a comparative evaluation of proficiency in each language — were more resistant than others to the onset of dementia and other symptoms of Alzheimer’s disease: the higher the degree of bilingualism, the later the age of onset.

Nobody ever doubted the power of language. But who would have imagined that the words we hear and the sentences we speak might be leaving such a deep imprint?

Link to full article

 

Giving Alzheimer’s Patients Their Way, Even Chocolate

Blog Post by Mike Brunt
Content from New York Times Article by Pam Belluck

(Note by Mike: I like this article, because it talks about caregiving as “dementia therapy” in the absence of effective medical treatments for Alzheimer’s. Having creative, caring people nearby is what seems to make the difference. This makes complete sense to me.)

Margaret Nance was, to put it mildly, a difficult case. Agitated, combative, often reluctant to eat, she would hit staff members and fellow residents at nursing homes, several of which kicked her out. But when Beatitudes nursing home agreed to an urgent plea to accept her, all that changed.

Disregarding typical nursing-home rules, Beatitudes allowed Ms. Nance, 96 and afflicted with Alzheimer’s, to sleep, be bathed and dine whenever she wanted, even at 2 a.m. She could eat anything, too, no matter how unhealthy, including unlimited chocolate. an urgent plea to accept her, all that changed.

And she was given a baby doll, a move that seemed so jarring that a supervisor initially objected until she saw how calm Ms. Nance became when she rocked, caressed and fed her “baby,” often agreeing to eat herself after the doll “ate” several spoonfuls.

With virtually no effective medical treatment for Alzheimer’s yet, most dementia therapy is the caregiving performed by families and nursing homes. Some 11 million people care for Alzheimer’s-afflicted relatives at home. In nursing homes, two-thirds of residents have some dementia.

Caregiving is considered so crucial that several federal and state agencies, including the Department of Veterans Affairs, are adopting research-tested programs to support and train caregivers. This month, the Senate Special Committee on Aging held a forum about Alzheimer’s caregiving.

“There’s actually better evidence and more significant results in caregiver interventions than there is in anything to treat this disease so far,” said Lisa P. Gwyther, education director for the Bryan Alzheimer’s Disease Research Center at Duke University.

Link to full New York Times Article

 

Reporting Elder Abuse

Posted by Meredith Williamson

Member, Senior Resource Alliance Northwest


The abuse of our elderly population is a growing problem.  Abuse can take on many forms.  It can occur anywhere. Often it goes unreported if it is perpetrated by a relative or close friend of the elderly person.

What is Elder Abuse?  For the purpose of Oregon State law regarding elderly abuse, an elderly person is defined as anyone over the age of 65.  Abuse includes:

  • A physical injury to the senior not resulting from an accident;
  • Neglect that leads to physical harm;
  • Abandonment;
  • Caregiver neglecting duties and obligations owed to an elderly person;
  • Wilful infliction of physical pain or injury;
  • Use of derogatory or inappropriate names, phrases or profanity, ridicule, harrassment, coercion, threats, cursing, intimidation or inappropriate sexual comments or conduct of such a nature as to threaten significant physical or emotional harm to the elderly person or person with a disability.
  • Certain sweepstakes promotions;
  • Wrongfully taking or appropriating money or property; or
  • Sexual contact that is not agreed upon by the elderly person.

 

Should I report? You are mandated by law to report abuse if, while you are acting under an official capacity, you have reason to believe that any senior with whom you come in contact has suffered abuse, or  is the perpetrator of the abuse.  Persons who may be acting in “official capacity” include health care professionals, employees of DHS, mental health providers, firefighters, etc.

Even if you are not required by law to file a report, if you see or have reason to believe abuse is happening, you should file a report.  Just like with any criminal behavior, it is best to report the suspected abuse and let the people who are trained investigate it.  If you file a report of suspected elder abuse, and you do so in good faith, you will be protected from potential civil liability that could otherwise result from the report.

How do I make a report? Call your local Department of Human Serices (DHS) or law enforcement agency in the county where the abuse occurred.  You will be asked the names and addresses of the elderly person and any persons responsible for the care of the elderly person, the type of abuse you are reporting, names of perpetrators or description if names are not known, and any other helpful information you can think of.  A list of the DHS (Area Agency on Aging) offices can be found in the Choice Senior Resource Guide or online at http://www.oregon.gov/DHS/spwpd/offices.shtml.

Adult Protective Services will arrange for immediate protection of the senior, assess the senior’s ability to participate in the investigation and arrange for services to prevent future abuse.

June 15th is National Elder Abuse Awareness Day.  Help spread the word about the issue of abuse by sharing this post or visiting www.ncea.aoa.gov to see how you can volunteer in your area.

For a free copy of the Choice Senior Resource Guide, please call Meredith at 503-353-7870 or order copies online.

 

Family Caregiver Support – 2012 Webinar Series

Blog Post by Portland-Area Offices of Home Instead Senior Care

The 2012 Family Caregiver Support Web Seminar Series provides access to information and advice from professionals experienced with issues faced by family caregivers.Caring for a senior loved one can bring a sense of fulfillment, but usually not without a few challenges as well. To help you feel a little more confident and equipped in your role as a family caregiver, the Home Instead Senior Care® network is launching the 2012 Family Caregiver Support Web Seminar Series, featuring free monthly seminars for family caregivers on a variety of essential caregiving topics.

The web seminars, hosted in cooperation with the American Society on Aging (ASA), provide tips, information and advice from the perspective of professionals who are well-versed in issues facing families caring for aging loved ones.

Please note, these Family Caregiver Webinars are not eligible for CEU credits. The CEU credit offering is only available for the webinars featured in the Professional Family Caregiver series.

Please pre-register for any Family Caregiver Webinar by the deadline of 9 PM PST the day before! for the following 2012 Senior Care Web Series. Please click each “Register Now” link below for more details of each webinar and to sign up.

Living at Home with Arthritis – Family Caregiver Webinar
Wednesday, March 21, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

How to Help your Senior Manage Medications – Family Caregiver Webinar
Wednesday, April 25, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Navigating the Senior Care Maze – Family Caregiver Webinar
Wednesday, May 23, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Caring for Someone with Alzheimer’s – Family Caregiver Webinar
Wednesday, June 27, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Managing the Stress of a Family Caregiver – Family Caregiver Webinar
Wednesday, July 25, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

How to Balance Work and At-Home Care – Family Caregiver Webinar
Wednesday, August 22, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Senior Cognitive Issues – Family Caregiver Webinar
Wednesday, September 26, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Helping Seniors with Finances – Family Caregiver Webinar
Wednesday, October 24, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Helping Seniors with Loss of Independence – Family Caregiver Webinar
Wednesday, November 28, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Multi-Generational Living – Family Caregiver Webinar
Wednesday, December 19, 2012 | 10:00 AM Pacific / 11:00 AM Mountain / 12:00 PM Central / 1:00 PM Eastern. Register Now.

Get more information and pre-register on any webinar above. You may also Email info@asaging.org or call 415-974-9600 if you have questions about registering for or accessing a recorded webinar.

 

 

WSJ Highlights Caregiver Resources from Genworth, AARP, and Home Instead

Blog Post by Portland-Area Offices of Home Instead Senior Care
Content from February 18, 2012 article in the Wall Street Journal, Family Value Section

Caring for an elderly relative isn’t just costly and time-consuming—studies show it could even harm your own health. Now, some companies and nonprofits are rolling out free and low-cost professional help for family caregivers.

Genworth Financial, a large long-term-care insurer, and AARP, the membership group for older Americans, on Thursday introduced a new service for AARP members through which the families of older adults with dementia and other illnesses can assess their needs and develop a care plan—either online, over the phone or in person with a registered nurse.

……….

The new service, formally known as AARP Caregiving Help and Advice from Genworth ranges from $12.99 for six months of online access to $149 for a phone assessment, a service plan and six months of online access, to $489 for an in-home consultation. Adding the “service finder” option—which includes researching local availability, providing quality ratings, negotiating discounts and coordinating the start of care—brings the phone total to $295 and the in-person bill to $665.

……….

Home Instead Senior Care, for its part, is trying to help caregivers—both its own 70,000 paid workers and the public—better meet the needs of people with Alzheimer’s.

“Rather than trying to force Alzheimer’s patients to live in our world in the here and now,” Home Instead’s Mr. Huber says, “we need to meet them in the past.”

For example, one of Home Instead’s clients in Omaha, Neb., where it is based, had served in the military. To persuade him to take a bath—something Alzheimer’s patients often have an aversion to—his caregiver told him a general was coming for inspection and he needed to get ready. He immediately took a bath, Mr. Huber says.

Such simple strategies, he adds, can help people with Alzheimer’s prolong their time at home as well.

By the end of this year, all of the company’s 600-plus franchised locations expect to offer Alzheimer’s training for caregivers. And in May, it plans to post an online course at the Help for Alzheimer’s Families website, which already has other resources.

These new programs come on top of free services offered by the U.S. Administration on Aging’s Eldercare Locator, which connects older adults and families to local agencies, and the nonprofit National Council on Aging’s BenefitsCheckUp site, which provides screening for more than 2,000 public and private programs.

Link to full Wall Street Journal article

 

“I Will Remember For You” Alzheimer’s Music Video

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Oh the places you used to go,
All the people you used to know,
The stories that you loved to tell
About a life that you lived so well.
It’s fine, you can rest if you want to.
I will remember for you,
I will remember too.

Music is just a story with a melody. The song “I Will Remember for You” played in the video above tells the story of a couple touched by Alzheimer’s disease. It was written and performed by Home Instead Senior Care staff member Dave Mainelli, and is inspired by all the families who are keeping the memories alive for loved ones experiencing memory loss. Music powerfully communicates emotion and narrative, making it an excellent tool to evoke memories for those living with Alzheimer’s or other dementias.

More about the benefits of music for people with Alzheimer’s disease or other dementias

 

Website Offers Help for Alzheimer’s Families

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

In my six and a half years of providing caregiving services to seniors at home, I have supported many families affected by Alzheimer’s disease as they struggle to understand and cope with the changes the disease brings to their senior loved ones. My desire is always to help the families know that while their journey will test their emotional and physical stamina, they are not alone and that help is available.

The families I have observed who were most centered in facing Alzheimer’s disease were the ones who had an understanding of the nature of the disease and who sought for and found emotional support through peer groups or professionals.

Because knowledge and understanding are so imperative for families coping with Alzheimer’s, I am pleased to refer you to an excellent online resource: http://www.helpforalzheimersfamilies.com.

The site answers questions such as -

  • What is the difference between Alzheimer’s disease & dementia?
  • What are the stages of Alzheimer’s and dementia?
  • Is Alzheimer’s inherited?

 

But it also goes beyond the basics to provide practical advice on topics such as  -

  • Capturing Memories for Someone with Alzheimer’s or Dementia
  • Alzheimer’s Conversation Tips
  • Creating a Memory Box

 

If you are a member of a family affected by Alzheimer’s disease, this site is for you. If you know a member of such a family, please do them a favor and point them to this thoughtful resource.

http://www.helpforalzheimersfamilies.com

 

 

 

Reinventing After a Family Crisis – from More Magazine

Blog Post by Home Instead Senior Care offices in the Portland Metro Area

Article from More Magazine written by Michelle Stacy

When her grandmother could no longer manage by herself, former marketing executive Denise Thomas found her passion: helping the elderly live at home for as long as possible.

On a sultry day in April 2011, Denise Thomas, the owner of Home Instead, a franchise business in Austin, Texas, drives to the home of an elderly client. Ninety-one-year-old Emily Lake moved into her comfortable single-story house five years ago and plans to stay there, thanks to Home Instead’s caregivers, who help her bathe, pay bills, shop, track medications and generally maintain her independence. For Thomas, visits to satisfied clients are the best part of her job.

Link to full article at More.com

 

Dispute Over Estate of Stieg Larsson Highlights Importance of Estate Planning

Post by Stephanie Carter, Elder Law Attorney with Draneas & Huglin, P.C.

Member, Senior Resource Alliance Northwest

In November 2004, Stieg Larsson, Swedish writer and journalist, died suddenly of a heart attack.  Larsson became famous after his death through the posthumous publication of his Millennium Trilogy (“The Girl With The Dragon Tattoo,” “The Girl Who Played With Fire” and “The Girl Who Kicked the Hornet’s Nest”).  Today, these books have sold more than 20 million copies in 41 countries and have been made into movies.

Larsson lived for 32 years with the architect Eva Gabrielsson.  They never married; they had no children; and he did not leave a will.  Swedish law makes no provision for common-law marriage.  Under the Swedish law of intestacy, Larsson’s entire estate was inherited by his Father and Brother, from whom he was estranged.

This disposition of Larsson’s estate sparked a bitter dispute between Larsson’s Father, Brother and Eva Gabrielsson.  Gabrielsson claimed that Larsson’s Father and Brother Larsson “were never a part of our lives” and that they are unsuited to handling his estate–including the valuable copyrights.

Larsson’s former workplace, Expo, owns the computer on which is stored the partial manuscript for the fourth book in the Millennium series.  Larsson’s Father and Brother own the contents of the computer.   However, Gabrielsson currently is in possession of the computer and has so far refused to hand it over.

Negotiations between the parties began in November 2009, but were broken off the following month when Gabrielsson announced she had declined a ”settlement” offer of about 2 million euros from Larsson’s estate (which is now valued in the tens of millions of euros).  The dispute remains unresolved.

 

Practical Application Under Oregon Law

The situation described above is unfortunately all too common.  The outcome under Oregon law would be similar to that of Sweden in this context. If a person dies with no will, the deceased person’s probate estate wil pass to members of his or her family in the order of priority listed in the statute.  If assets like bank accounts, certificate of deposit, and life insurance list beneficiaries, the asset will pass to the listed beneficiary.  If no beneficiary is listed, the asset becomes a part of the probate estate.

The problem also arises when a deceased person signs estate planning documents, but never updates them and does not regularly (every 3-5 years) check the beneficiary designations on assets that do not pass by will or trust.

It is very difficult when I have to tell a client that he or she will not share in a loved one’s estate because of outdated documents.  Do you have estate planning in place?  If so, how long has it been since you updated it?

Stephanie Carter, Draneas & Huglin, P.C., 4004 Kruse Way Place, Suite 200,
Lake Oswego, OR, (503) 496-5509, Stephanie@draneaslaw.com

 

Maryville Memory Care Open House Sept. 29

Blog Post by Michael Kilbury, Maryville Memory Care Administrator

The Sisters of St. Mary of Oregon cordially invite you to attend the dedication of Maryville Memory Care

Join us for an afternoon of celebration on
Thursday, September 29, 2011 from 3:00 to 5:00 p.m.

Guests will tour the facility and light refreshments will be served.

Directions:
Take Farmington Rd. and turn north on 148th Ave. onto the campus. The Maryville Memory Care entrance is off of 148th Ave. across from Valley Catholic Elementary & Middle School and behind Maryville Nursing Home.

 

Printable Event Flyer

 

Michael Kilbury
Direct: 503-718-5381
Main: 503-643-8626
Fax: 503-520-1435

 

Book: “Moments This Good, The Softer Side of Alzheimer’s”

Book Recommendation by Mike Brunt

Bonnie Nester’s latest book, ”Moments this Good: The Softer Side of Alzheimer’s,” is a memoir of hope and love.  Join Bonnie as she walks beside her mother through the tangled trails of Alzheimer’s Disease. In “Moments this Good,” Bonnie shares her experiences and insights in a tender and a lovingly humorous way. This is an uplifting, encouraging read to guide others who are losing loved ones to this debilitating disease. Moments This Good gives back the humanity and dignity that Alzheimer’s tries to steal. 

A Portion of the proceeds for this book are donated to the Alzheimer’s Association.

If you would like to purchase a signed and/or personalized copy of any of her books, contact her directly.  She also welcomes any comments – she loves hearing from fellow readers: bonnie@bonnienester.com.

Publication Date: May 2008
ISBN: 9780980244601
208 Pages
26 Black & White Photos
Golden Quill Publishing

Order “Moments this Good”

Read an Excerpt
Bonnie lives in Sherwood, Oregon and is a supporter of Senior Provider Information Network. Learn more about Bonnie and her work at http://www.bonnienester.com/.

Advice for Family Caregivers with Feelings of Resentment

Blog Post by Dr. Amy D’Aprix – March 28, 2011

Question: 

My mom is in a memory care unit 30 minutes away. I make plans to see her two to three times a week. The facility is wonderful and takes good care of her. Many times, when I leave, I feel resentful for her taking so much of my time. I am the primary care person for her. My sister and brother support me but live out of state and cannot get here to see her often. Is this feeling of resentment normal?

Dr.  Amy: 

In my experience, caregivers feel a wide range of emotions. Love, feelings of giving back, gratitude for the opportunity to provide care—as well as anger, resentment, and guilt. All of these feelings are normal.

If your resentment is tied to the number for visits, maybe you have too much on the go and need some help. Are two to three visits a week too much? Perhaps you can do fewer. Or maybe you can hire a home care worker to visit mom once a week, in your place. That would lessen your load. Home Instead Senior Care CAREGivers perform this service. They can go to the memory care facility, keep your mom company and also take care of errands she may have.

At some point, most caregivers need a break from their responsibilities. You might want to hire someone to take over your visiting responsibilities for a week or two. You might also plan to take a break when your brother and sister come to town. Or both!  

If you are feeling a lot of resentment, you may want to get help. As caregivers, each of us has a unique relationship with the person we’re caring for. Often, our feelings today are colored by what happened in the past. If you think this is true for you, a support group or counsellor can help you sort out your feelings and feel more at peace.

More advice from Dr. Amy

Discovery Doubles Genetic Clues to Alzheimer’s

Post by Ann J. Curley, CNN Medical Assignment Manager
Link to article on CNN blog

Discovery Doubles Genetic Clues to Alzheimer’s

Two new reports in Nature Genetics detail the discovery of five new pathways for detecting Alzheimer’s disease, the memory-stealing brain illness that is especially prevalent among the elderly.

Previous research had identified five genes linked to Alzheimer’s disease, or AD. The combined efforts of an international consortium of researchers has raised those known genetic markers to 10.

“We’ve really doubled the number of clues we have about late-onset AD. We have a lot left to do to complete the story of AD genetics, but this is a big step,” said Professor Gerard D. Schellenberg of the University of Pennsylvania, lead researcher for one of the studies.

“Almost as important as the genes discovered is the fact that a large number of investigators are working together to solve the genetics of AD,” Schellenberg said. “We just started an international consortium, IGAP (International Genomics of Alzheimer’s Project), so all the groups that produced both papers are now collaborating.”  IGAP includes scientists from four university research groups and creates a shared database that includes genetic information for more than 40,000 patients.

“Of course, I am a bit biased, but I think this is a big deal,” Schelleberg said.

While the new genetic findings are far from being a cure for Alzheimer’s, Dr. Bill Thies, chief medical and scientific officer of the Alzheimer’s Association praised the findings of both studies, noting their strong methods.

“In the genetics world we’ve had a history of small samples,” Thies said. “The fact that we’ve confirmed some genes in a large group means that it’s real, not a statistical anomaly.” The IGAP will continue to share genetic findings, he said, with the hopes  their research findings will offer keys to unlocking information about all of the routes that Alzheimer’s takes in the body. “The more pathways that we can explore will allow us to make progress for preventing and treating AD eventually.”

Schellenberg said research is at a “critical point” in Alzheimer’s treatment.

“Much attention has been focused on therapies that target A-beta production,” better known as brain deposits that cause plaques and tangles, gumming up the brain’s machinery, he said. But the new genetic findings look at new pathways that merit further study, including one that confirms a previous theory that focuses on the metabolism of cholesterol. Another important theme in the new research is that  “innate immunity” is important in relation to disease susceptibility. That’s the theory that  Alzheimer’s could be part of the body attacking itself because it perceives a threat to its protective immune system.

“This is a really important idea that needs to be followed up,” he said.

5.2 million Americans are currently living with Alzheimer’s disease, according to the Alzheimer’s Association, which estimates that by 2050, as many as 16 million Americans will have the disease.

CAREGiver Vignette: “You Can’t Go Outside Like That!”

Post by Mike Brunt

One of my wonderful CAREGivers wrote to me about the following experience she had with our client.

CAREGiver Vignette: “You Can’t Go Outside Like That!”

My client, Helen, has Alzheimer’s disease. She requires constant attention, redirection, and verbal cueing. Her elderly husband, Paul, recently had back surgery. One day when Helen and I returned from a walk, Paul was lying on his back in the living room to relieve the pressure on his back. He was wearing only an undershirt and boxers.

After his rest, Paul felt refreshed and decided to check on his tomato plants on the patio, only a few yards away from the golf course greenway. Golfers were right outside, ready to tee off. Helen cautioned him, “You can’t go outside like that!” I thought, “Good for her! She’s very aware today!”

Helen scurried to the bedroom and returned with a clean pair of black socks and black dress shoes. “Should I have brought the brown ones?” she worried. Paul and I shared a smile and assured her she had done very well. Then we all walked out to check on the plants together. Black sox, dress shoes, boxers and all.

Congress Endorses a National Plan to Combat Alzheimer’s

With Alzheimer’s Patients Growing in Number, Congress Endorses a National Plan

By PAM BELLUCK
Original Article Published in the New York Times: December 15, 2010

Congress has voted unanimously to create, for the first time, a national plan to combat Alzheimer’s disease with the same intensity as the attacks on AIDS and cancer.

The bill, expected to be signed by President Obama, would establish a National Alzheimer’s Project within the Department of Health and Human Services, to coordinate the country’s approach to research, treatment and caregiving.

Its goal, the legislation says, is to “accelerate the development of treatments that would prevent, halt or reverse the course of Alzheimer’s” and “improve the early diagnosis of Alzheimer’s disease and coordination of the care and treatment of citizens with Alzheimer’s.”

The project would include an advisory council of representatives from agencies like the Centers for Disease Control and Prevention, the National Institutes of Health, the Department of Veterans Affairs, the Food and Drug Administration, the Indian Health Service and the Centers for Medicare and Medicaid Services. Scientific experts, health care providers and people caring for relatives with Alzheimer’s would also be included.

“If you go to war, you have planning, planning, planning,” said Representative Christopher H. Smith, Republican of New Jersey, who co-sponsored the bill. “Well, this is a war on a dreaded disease. We need to bring all the disparate elements together for the greatest possible result.”

While the act itself does not authorize more money, one of the recommendations of the national plan “is likely to be for an increase in research money for Alzheimer’s,” said another co-sponsor of the bill, Senator Susan Collins, Republican of Maine.

“We spend one penny on research for every dollar the federal government spends on care for patients with Alzheimer’s,” she said. “That just doesn’t make sense. We really need to step up the investment.”

The legislation was driven by the rapidly rising number of people with Alzheimer’s — about 5.3 million now, and expected to triple by 2050. The cost of their care to Medicare and Medicaid was about $170 billion last year. By 2050, Ms. Collins said, it will grow to $800 billion a year, more than the military budget.

The House passed the bill on Wednesday, and the Senate last Thursday.

The advisory council would draft an annual report on federally financed programs involving research, treatment, nursing homes and home care, recommending which to expand or eliminate. It would also ensure that members of ethnic and racial groups at higher risk for Alzheimer’s be included in research and treatment.

Alzheimer’s experts said the effort could make a significant difference.

“What really makes this so powerful is that it takes us from a lot of small efforts going on locally to doing something in a coordinated way,” said Dr. Kenneth Kosik, a neuroscientist at the University of California, Santa Barbara. “If there’s one thing we know in science it is that to draw conclusions we need numbers, large-size populations to study.”

The national plan will reinforce efforts to detect brain changes that occur years before people develop symptoms of dementia, and to develop drugs to prevent or substantially delay symptoms.

“Dealing with symptoms only after the fact is not going to solve the problem,” said Dr. Zaven Khachaturian, a former director of Alzheimer’s research for the National Institutes of Health. Delaying symptoms for just five years, he said, “we will cut down tremendously” on the number of people who live long enough to develop Alzheimer’s.

Representative Edward J. Markey, a Massachusetts Democrat who co-sponsored the bill, said his mother had had Alzheimer’s. “We’re trying to create a sense of urgency so that we’re developing multiple pathways that ultimately might be successful,” he said. “We’ve done it with polio, we’ve done it with AIDS.

“It’s a unique disease to the extent that patients can’t lobby for themselves, and the person close to them cannot lobby because they’re home taking care of that person. There are no Alzheimer’s survivors.”

A version of this article appeared in print on December 16, 2010, on page A26 of the New York edition.

Six Things to Look for When Visiting Elderly Parents

Blog Post by Lynne Coon, MS

If you live far away from your aging parents, the holiday season is often the one time you may see them all year. Enjoy your visit and use the opportunity to check to see how they’re coping.

1. The condition of your mother and father’s home. If things don’t look clean or you see stacks of paperwork, magazines, or other stuff sitting around this may be a sign that they’re not keeping up. Ask them how they’re doing. It might be a good time to explore whether they could use a housecleaner or are ready to move to a smaller living space.

2. Food in cupboards, refrigerator and freezer. How much food is in the cupboards and refrigerator? Are things outdated? Is the freezer full of frozen dinners? Food preparation is often one of the first things to fall by the wayside for an older adult.

3. Covert messages from friends and neighbors. If you have an opportunity to speak with your parents’ close friends and neighbors, listen closely for anything they may be trying to communicate. They may be torn between not wanting to meddle and feeling concerned so they may not give you direct information. If you suspect something is different about your parents ask friends and neighbors if they think anything is different. They may be looking to you for a signal that it’s okay to share their concerns.

4. How your parents are in social situations. Are they happy, present in the conversation, aware of what’s going on around them? Or do they look overwhelmed or confused? If your parents spend a great deal of time alone, being around a large group of people can be overwhelming. If they seem this way throughout your trip or no matter how small the group they’re around, it might be cause for further investigation.

5. Opportunities to interact with their medical professionals. If there’s an opportunity to tag along to a medical appointment do it. While HIPPA prevents medical staff from sharing information with you without your parents’ permission, if you go into the room when they see the doctor you can hear what’s being discussed and ask any questions you have. This might also be a good time to ask your parents for permission to talk with medical staff. (This requires that they sign a release specifically listing you as someone their doctor can share information with. Explain to your parent’s that it would be helpful to be able to talk to their doctor in an emergency.

6. Driving skills. Be a passenger in the car with your parent. Simply observe his/her comfort level behind the wheel, how she/he responds to traffic situations and if he/she shows any signs of confusion. You may need to allow for the fact that just you being in the car may make her/him nervous.

If you discover things that concern you, don’t jump to the conclusion that your parent is slipping. For example, in #1-#4 above, the changes you see may not be the result of your parents getting older and frail but of drug interactions or depression. Some next steps might be to discuss your concerns with your parents; find out what medications your parents are on and do your own research on drug interactions; encourage them to talk to their doctor about drug interactions or a depression screening; consider whether a neurological evaluation would be helpful; visit again, sooner rather than later if you have any concerns, and continue to monitor.

Enjoy your time with family this holiday season!

Lynne Coon, MS — counselor serving communities in the greater Portland metropolitan area including: Portland, Vancouver, Lake Oswego, Tigard, Tualatin, Beaverton, Milwaukie, Oregon City, Hillsboro, Forest Grove, King City, West Linn, Wilsonville, Gresham, Troutdale, Scappoose, St Helens, Camas, Brush Prairie, Battle Ground, and Multnomah County, Clackamas County, Washington County and Clark County.

7 Types of Normal Memory Problems

Blog Post by Mike Brunt

Content from Harvard Health Publications, Harvard Medical School - Link to Article

Forgetfulness — 7 types of normal memory problems

It’s normal to forget things from time to time, and it’s normal to become somewhat more forgetful as you age, but it’s not normal to forget too much. But how much forgetfulness is too much? How can you tell whether your memory lapses are within the scope of normal aging or are a symptom of something more serious?

Healthy people can experience memory loss or memory distortion at any age. Some of these memory flaws become more pronounced with age, but — unless they are extreme and persistent — they are not considered indicators of Alzheimer’s or other memory-impairing illnesses.

Seven normal memory problems

1. Transience
This is the tendency to forget facts or events over time. You are most likely to forget information soon after you learn it. However, memory has a use-it-or-lose-it quality: memories that are called up and used frequently are least likely to be forgotten. Although transience might seem like a sign of memory weakness, brain scientists regard it as beneficial because it clears the brain of unused memories, making way for newer, more useful ones.

2. Absentmindedness
This type of forgetting occurs when you don’t pay close enough attention. You forget where you just put your pen because you didn’t focus on where you put it in the first place. You were thinking of something else (or, perhaps, nothing in particular), so your brain didn’t encode the information securely. Absentmindedness also involves forgetting to do something at a prescribed time, like taking your medicine or keeping an appointment.

3. Blocking
Someone asks you a question and the answer is right on the tip of your tongue — you know that you know it, but you just can’t think of it. This is perhaps the most familiar example of blocking, the temporary inability to retrieve a memory.  In many cases, the barrier is a memory similar to the one you’re looking for, and you retrieve the wrong one. This competing memory is so intrusive that you can’t think of the memory you want. A common example is calling your older son by your younger son’s name, or vice versa.

Scientists think that memory blocks become more common with age and that they account for the trouble older people have remembering other people’s names. Research shows that people are able to retrieve about half of the blocked memories within just a minute.

4. Misattribution
Misattribution occurs when you remember something accurately in part, but misattribute some detail, like the time, place, or person involved. Another kind of misattribution occurs when you believe a thought you had was totally original when, in fact, it came from something you had previously read or heard but had forgotten about. This sort of misattribution explains cases of unintentional plagiarism, in which a writer passes off some information as original when he or she actually read it somewhere before.

As with several other kinds of memory lapses, misattribution becomes more common with age. Age matters in at least two ways. First, as you age, you absorb fewer details when acquiring information because you have somewhat more trouble concentrating and processing information rapidly. Second, as you grow older, your memories grow older as well. And old memories are especially prone to misattribution.

5. Suggestibility
Suggestibility is the vulnerability of your memory to the power of suggestion — information that you learn about an occurrence after the fact becomes incorporated into your memory of the incident, even though you did not experience these details. Although little is known about exactly how suggestibility works in the brain, the suggestion fools your mind into thinking it’s a real memory.

6. Bias
Even the sharpest memory isn’t a flawless snapshot of reality. In your memory, your perceptions are filtered by your personal biases — experiences, beliefs, prior knowledge, and even your mood at the moment. Your biases affect your perceptions and experiences when they’re being encoded in your brain. And when you retrieve a memory, your mood and other biases at that moment can influence what information you actually recall.

Although everyone’s attitudes and preconceived notions bias their memories, there’s been virtually no research on the brain mechanisms behind memory bias or whether it becomes more common with age.

7. Persistence
Most people worry about forgetting things. But in some cases people are tormented by memories they wish they could forget, but can’t. The persistence of memories of traumatic events, negative feelings, and ongoing fears is another form of memory problem. Some of these memories accurately reflect horrifying events, while others may be negative distortions of reality.

People suffering from depression are particularly prone to having persistent, disturbing memories. So are people with post-traumatic stress disorder (PTSD). PTSD can result from many different forms of traumatic exposure — for example, sexual abuse or wartime experiences. Flashbacks, which are persistent, intrusive memories of the traumatic event, are a core feature of PTSD.

Link to Article